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The Chronic Illness Survey Adventure – an international study of symptoms
The Chronic Illness Survey Adventure What is it? An international survey-based study to probe more deeply into ME/CFS, long COVID, POTS, hEDS and MCAS – ‘Symptom Cluster Characterization in Complex Chronic Disease’. Who is behind it? It is a partnership … Continue reading
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Tagged MEAction, patient survey, Prof Mady Hornig, research, symptoms, The Chronic Illness Survey Adventure
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CBT & GET are ‘unsuitable treatments or management approaches for ME/CFS’
The results of the Forward ME and Oxford Brookes University patient survey on CBT and GET in ME/CFS have been published. 2,274 people with ME/CFS of all ages responded to the online survey with their experiences of cognitive behavioural therapy and/or … Continue reading
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Tagged CBT, cognitive behavioural therapy, Forward ME Group, GET, graded exercise therapy, Oxford Brooks University, patient survey
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Survey about ME triggers – take part in a university research project
Triggers & causes of ME & CFS Research project You are invited to take part in a research project looking into physiological and biomedical triggers and causes of Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). The researcher is a … Continue reading
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Tagged cause, patient survey, research study, triggers, Worcester University
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ME/CFS patients’ reports of symptom changes following CBT, GET & pacing treatments
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys, by Keith Geraghty, Mark Hann, Stoyan Kurtev in Journal of Health … Continue reading
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Tagged CBT, cognitive behavioural therapy, Dr Keith Geraghty, GET, graded exercise therapy, Mark Hann, pacing, patient satisfaction, patient survey, Stoyan Kurtev
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PACE investigators’ response is misleading regarding patient survey results
Research article abstract: PACE investigators’ response is misleading regarding patient survey results, by Karen D Kirke in Journal of Health Psychology Published May 11, 2017] The PACE investigators’ citation of a patient survey might mislead readers into thinking that the … Continue reading
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Tagged Karen D Kirke, PACE trial, patient survey
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