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Hidden from sight: why the complexity of ME/CFS needs to be recognised by policy makers
Hidden from Sight: Why the complexity of ME/CFS needs to be recognised by policy makers, by Tomruk Ustunkaya and Richard Machin, by People, Place and Policy Vol 15, #2, pp. 91-99, November 2021 Background: An estimated 260,000 people in the UK … Continue reading
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Tagged biomedical research, Department of Health and Social Care, DWP, politics, Richard Machin, Tomruk Ustunkaya, UK government, welfare benefits
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New book: Science, Politics, …….and ME: a health scandal in our generation
CreateSpace.com book publication announcement, 5 March 2017: Science, Politics, …and ME A health scandal in our generation, by Dr Ian Gibson & Elaine Sherriffs Few diseases can have been so maligned by false information, so manipulated by an insidious establishment-controlled ideology, or so poorly dealt with … Continue reading
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Tagged Dr Ian Gibson, Elaine Sherriffs, politics
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What would help people with ME get into politics?
New Statesman article, by David Skuzbee, 11 August 2016: Don’t forget the most under-represented group in our democracy – disabled people Roughly 16 per cent of working age adults are living with a limiting long-term illness, impairment, or disability, but … Continue reading
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Tagged David Skuzbee, disability, Lucy Seymour-Smith, Mathy Selvakumaran, New Statesman, Paul Maynard, politics
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Disabled People’s manifesto for 2016 elections
Disability Wales Announce Disabled People’s Manifesto #itsmyright Disability Wales on 17th September 2015 presented its Manifesto in the Seneddd calling for an Enabling Wales where disabled people, as citizens of a modern inclusive nation, truly experience their rights, equality and independence, … Continue reading
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Tagged disability, disability hate crime, Disability Wales, Disabled people's manifesto, elections, Independent Living Wales bill, politics, Poverty, Welfare reform
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Countess of Mar on politics and ME
The Countess of Mar addressed the Royal Society of Medicine’s meeting: ME/CFS: Frontiers in research, clinical practice and public perception, Wednesday 18 March 2015 Ladies and gentlemen, I am grateful to the Royal Society of Medicine who have given me the … Continue reading
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Tagged Countess of Mar, politics, Royal Society of Medicine
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