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Understanding severely affected CFS: the gravity of the situation
Review abstract: Understanding severely affected chronic fatigue syndrome (CFS): The gravity of the situation, by Victoria Strassheim, Robert Ballantine, Katie L. Hackett, James Frith, Julia L. Newton in Physical Therapy Reviews [Preprint May 25, 2017] Objective: To describe how the effects of gravity … Continue reading
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Tagged bed rest, deconditioning, gravity, James Frith, Katie L Hackett, orthostatic response, Prof Julia Newton, rehabilitation, Robert Ballantine, severe ME, Victoria Strassheim
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Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands
Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading
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Tagged 25% ME Group, BACME, British Association for CFS/ME, Dr Mark Vink, Greg Crowhurst, Moment approach, severe ME, Stonebird
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A recumbent isometric yoga program for patients with severe CFS/ME
Research abstract: BACKGROUND: Our previous randomized controlled trial demonstrated that isometric yoga in a sitting position reduces fatigue in patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). However, some patients experience difficulties sitting or practicing isometric yoga in a sitting position … Continue reading
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Tagged Hisako Wakita, isometric yoga, Keishin Kimura, severe ME, Takakazu Oka
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Life stories & photo-elicited diaries of people with severe ME/CFS
Thesis abstract: Myalgic Encephalomyelitis (ME) remains a controversial disease, shrouded in medical and social uncertainty. This thesis examines connections between language, space and representations of becoming diagnosed and living with the often severe effects of this chronic illness. Dominant medical and political institutions, often … Continue reading
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Tagged photo-elicited-diaries, severe ME, Sharon Gallagher
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MEA to fund new research into biomarkers and markers of disease activity in people with severe ME/CFS
ME Association announcement, 20 December 2016: MEA to fund new research into biomarkers and markers of disease activity in people with severe ME/CFS We are pleased to announce that – following the normal rigorous peer review procedures – the MEA Ramsay … Continue reading
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Tagged ME Association, microRNAs, PBMC, peripheral blood mononuclear cells, Prof Elisa Oltra, Ramsay Research Fund, severe ME, UK ME/CFS Biobank
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Severe ME in Australia: suffering ignored and denied help
ME Australia blog post, by Sasha Nimmo, 13 September 2016: Severe ME: Suffering ignored and denied help Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian … Continue reading
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Tagged Australia, Sasha Nimmo, severe ME
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Housebound people with ME have greater physical impairment
Research abstract: Objectives: The objective of this study was to examine individuals with myalgic encephalomyelitis and chronic fatigue syndrome who are confined to their homes due to severe symptomatology. The existing literature fails to address differences between this group, and less severe, nonhousebound patient … Continue reading
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Tagged bedbound, Chronic illness, DePaul Symptom Questionnaire, housebound, Prof Julia Newton, Prof Leonard Jason, severe ME, Tricia Prendergast
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The misrepresentation of ME in nursing
Article abstract: Re : Diagnosing and managing chronic fatigue syndrome, by D Roberts in Nursing in Practice 89 (2016) Every nurse has a duty to speak up about wrong practice, or the potential to do harm, I have grave concerns … Continue reading
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Tagged D Roberts, Greg Crowhurst, nursing care, severe ME
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Severe ME conference videos from Sweden
“The National Society for ME patients (RME) arranged for the autumn 2015 conference “The Invisible – a conference on severe ME / CFS and the way forward“, in Stockholm on Monday, 19 October and in Gothenburg on Thursday 22 October. Speakers … Continue reading
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Tagged Dr Daniel Peterson, Lena Nilsson, Prof Leonard Jason, Prof Mady Hornig, severe ME, The invisible
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Low NK Cell activity in CFS and is related to severity
Review abstract: Background: Natural killer (NK) cells act as an immune surveillance against invading pathogens and tumors. NK cell cytotoxicity (NKCC) has been reported to be decreased in patients with CFS. Methods: The objective of this review was to conduct … Continue reading
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Tagged immune dysfunction, Natural Killer cells, NK cells, severe ME
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