Tag Archives: Tom Kindlon

QMUL announces they will release the PACE data

ME Action blog post by Alex Anderssen, 9 September 2016: QMUL releases the PACE data Queen Mary University of London (QMUL) has released the PACE data to a patient who requested it under the Freedom of Information Act, as ordered by a … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on QMUL announces they will release the PACE data

Tribunal orders release of PACE data

ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading

Posted in News | Tagged , , , , , , , , , , | Comments Off on Tribunal orders release of PACE data

ME/CFS Patient Organisations should be free to not promote CBT & GET for ME/CFS & the models underlying them

Facebook post  by Tom Kindlon, 24 July 2016: ME/CFS Patient Organisations should be free to not promote CBT and GET for ME/CFS and the models underlying them As somebody involved in running a myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patient organisation … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on ME/CFS Patient Organisations should be free to not promote CBT & GET for ME/CFS & the models underlying them

A UK based review of recommendations for the management of CFS

Research highlights: There were marked discrepancies between patient and professional sources’ views on treatment recommendations. Patient organisations preferentially recommended medicines, pacing and complementary treatments Medical organisations recommended rehabilitation therapies Research abstract: Objectives: Chronic fatigue syndrome (CFS) is a controversial illness, with … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on A UK based review of recommendations for the management of CFS

Methods of applying the CDC1994 case definition

Research abstract: Background: Multiple case definitions are in use to identify chronic fatigue syndrome (CFS). Even when using the same definition, methods used to apply definitional criteria may affect results. The Centers for Disease Control and Prevention (CDC) conducted two population-based studies estimating CFS … Continue reading

Posted in News | Tagged , , | Comments Off on Methods of applying the CDC1994 case definition

Self-management helpful for idiopathic chronic fatigue

Research abstract: OBJECTIVE: To determine the efficacy of a cognitive-behavioral intervention for patients meeting U.S. Centers for Disease Control and Prevention (CDC) criteria for idiopathic chronic fatigue (ICF). ICF is thought to be a less severe disorder than chronic fatigue … Continue reading

Posted in News | Tagged , , , , | Comments Off on Self-management helpful for idiopathic chronic fatigue

The significance to ME/CFS of the change to the UK Law on consent

S Campbell writes in Phoenix rising forum, Dec 23 2015: In March this year there was a landmark change to the UK law on consent which has significant implications for patients with ME/CFS. For full details of this change in … Continue reading

Posted in News | Tagged , , , , , , , , , | Comments Off on The significance to ME/CFS of the change to the UK Law on consent

Why has the PACE Study’s “Sister Trial” been “Disappeared” and Forgotten?

David Tuller continues his analysis of research about treatments for CFS with an examination of the FINE trial.  A summary has been compiled by MEAction. Virology blog: Trial By Error, Continued: Why has the PACE Study’s “Sister Trial”been “Disappeared” and Forgotten? [9 … Continue reading

Posted in News | Tagged , , , , , , , , , , , , , | Comments Off on Why has the PACE Study’s “Sister Trial” been “Disappeared” and Forgotten?

People with ME respond to PACE trial with their stories

Irish Independent: ‘No one chooses to have ME – everything changed when I became ill’ [Tom Kindlon Oct 30] As a new study suggests that ME can be beaten through therapy and exercise, long-term sufferer Tom Kindlon says it’s not that … Continue reading

Posted in News | Tagged , , , , | Comments Off on People with ME respond to PACE trial with their stories

Trial by error: the troubling case of the PACE CFS study

David Tuller has written a 4 part examination of the PACE trial in Virology blog entitled: Trial by error: the troubling case of the PACE CFS study. He is academic coordinator of the concurrent masters degree program in public health and … Continue reading

Posted in News | Tagged , , , | Comments Off on Trial by error: the troubling case of the PACE CFS study