Tag Archives: Tom Kindlon
QMUL announces they will release the PACE data
ME Action blog post by Alex Anderssen, 9 September 2016: QMUL releases the PACE data Queen Mary University of London (QMUL) has released the PACE data to a patient who requested it under the Freedom of Information Act, as ordered by a … Continue reading
Tribunal orders release of PACE data
ME Action blog post, by Alex Anderssen, 16 August 2016: Tribunal orders release of PACE data A tribunal panel has ordered Queen Mary University of London (QMUL) to release anonymised data from the PACE trial to Mr. Alem Matthees, a patient … Continue reading
ME/CFS Patient Organisations should be free to not promote CBT & GET for ME/CFS & the models underlying them
Facebook post by Tom Kindlon, 24 July 2016: ME/CFS Patient Organisations should be free to not promote CBT and GET for ME/CFS and the models underlying them As somebody involved in running a myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patient organisation … Continue reading
A UK based review of recommendations for the management of CFS
Research highlights: There were marked discrepancies between patient and professional sources’ views on treatment recommendations. Patient organisations preferentially recommended medicines, pacing and complementary treatments Medical organisations recommended rehabilitation therapies Research abstract: Objectives: Chronic fatigue syndrome (CFS) is a controversial illness, with … Continue reading
Methods of applying the CDC1994 case definition
Research abstract: Background: Multiple case definitions are in use to identify chronic fatigue syndrome (CFS). Even when using the same definition, methods used to apply definitional criteria may affect results. The Centers for Disease Control and Prevention (CDC) conducted two population-based studies estimating CFS … Continue reading
Self-management helpful for idiopathic chronic fatigue
Research abstract: OBJECTIVE: To determine the efficacy of a cognitive-behavioral intervention for patients meeting U.S. Centers for Disease Control and Prevention (CDC) criteria for idiopathic chronic fatigue (ICF). ICF is thought to be a less severe disorder than chronic fatigue … Continue reading
Why has the PACE Study’s “Sister Trial” been “Disappeared” and Forgotten?
David Tuller continues his analysis of research about treatments for CFS with an examination of the FINE trial. A summary has been compiled by MEAction. Virology blog: Trial By Error, Continued: Why has the PACE Study’s “Sister Trial”been “Disappeared” and Forgotten? [9 … Continue reading
People with ME respond to PACE trial with their stories
Irish Independent: ‘No one chooses to have ME – everything changed when I became ill’ [Tom Kindlon Oct 30] As a new study suggests that ME can be beaten through therapy and exercise, long-term sufferer Tom Kindlon says it’s not that … Continue reading
Trial by error: the troubling case of the PACE CFS study
David Tuller has written a 4 part examination of the PACE trial in Virology blog entitled: Trial by error: the troubling case of the PACE CFS study. He is academic coordinator of the concurrent masters degree program in public health and … Continue reading