Tag Archives: Greg Crowhurst

With severe ME, everything is cut off from possibility

by Greg Crowhurst, Stonebird

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Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands

Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading

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The misrepresentation of ME in nursing

Article abstract: Re :  Diagnosing and managing chronic fatigue syndrome, by D Roberts in Nursing in Practice 89 (2016) Every nurse has a duty to speak up about wrong practice, or the potential to do harm, I have grave concerns … Continue reading

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Responses to ‘Fear of exercise’ report in BMJ

The BMJ reports on the latest study from the PACE trial published on 13 January in the Lancet Psychiatry, with an article by Ingrid Torjesen. A number of letters in response challenging the research conclusions have been published online including those by: Prof … Continue reading

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Paralysis in ME

Study abstract Paralysis is a symptom that is rarely highlighted in the literature for ME, yet is found amongst the most severely ill ME population and even some of those not so severely affected. My wife has experienced it for … Continue reading

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