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Ensuring the voice of the very severely affected ME/CFS patient is heard in research
Ensuring the voice of the very severely affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patient is heard in research-a research model, by Helen Baxter Research article abstract: Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant … Continue reading
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Tagged Helen Baxter, ME Research UK, reasonable adjustments, research methods, very severe ME/CFS, Victoria Strassheim
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Research: A comprehensive examination of severely ill ME/CFS patients
A comprehensive examination of severely ill ME/CFS patients, by Chia-Jung Chang, Li-Yuan Hung, Andreas M. Kogelnik, David Kaufman, Raeka S Aiyar, Angela M Chu, Julie Wilhelmy, Peng Li, Linda Tannenbaum, Wenzhong Xiao, Ronald W Davis in Healthcare Vol 9, #10, p … Continue reading
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Tagged Andreas Kogelnik, Angela M Chu, Chia-Jung Chang, David Kaufman, Julie Wilhelmy, Li-Yuan Hung, Linda Tannenbaum, long Covid, Peng Li, Prof Ronald W Davis, Quality of life, Raeka S Aiyar, symptoms, very severe ME/CFS, viral infections, Wenzhong Xiao
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Life-threatening malnutrition in very severe ME/CFS
Life-threatening malnutrition in very severe ME/CFS, by Helen Baxter, Nigel Speight and William Weir in Healthcare 2021, 9(4), 459; [doi.org/10.3390/healthcare9040459] 14 April 2021 (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected) Case Reports … Continue reading
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Tagged case report, case studies, domiciliary care, Dr Nigel Speight, Dr William Weir, enteral feeding, Helen Baxter, HENS dietician, Home Enteral Nutrition Service, malnutrition, Mast cell activation disorder, MCAD, tube feeding, very severe ME/CFS
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