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Latest News
- Research: ME/CFS – diverse experiences, one recognisable illness
- Research: Marginal differences found between ME/CFS & LC
- Research: Impaired recovery from exertion in ME/CFS confirmed – treatments suggested
- Nutrition management in Severe ME – parents & carers respond
- Calls for wider research into PEM in ME/CFS, Long COVID & FM
Archives
Tag Archives: #LearnFromME
Pacing my way through Pain Clinic
Avoiding PEM by pacing my way through Pain Clinic PF gives her experience of an ME/CFS friendly way of attending a Pain Clinic in south Wales. As my referral to the Pain Clinic was made during Covid lockdown I … Continue reading
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Tagged #LearnFromME, #WorldMEday, PEM
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PEM: Running out of battery & feeling intensely unwell: a carer’s perspective
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading
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Tagged #LearnFromME, #WorldMEday, carer, DecodeME study, PEM, PESE, Post Exertional Symptom Exacerbation, Post-exertional malaise, symptoms, World ME Day
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Video yourself for World ME Day 2023!
Call-to-action: Video yourself for World ME Day 2023! Follow Holly’s example and tell the world what happens when pushing harder makes you sicker, for World ME Day on May 12th. ME, or Myalgic Encephalomyelitis, is a debilitating disease that affects … Continue reading
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Tagged @wamesmecfs, @WorldMEAlliance, #LearnFromME, #WorldMEday, PEM, PESE, Post Exertional Symptom Exacerbation, Post-exertional malaise
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New fact sheet on ME from the WMEA
Myalgic Encephalomyelitis factsheet WAMES has been working with ME organisations around the world to produce a new fact sheet on Myalgic Encephalomyelitis (ME), with a particular focus on post-exertional malaise (PEM). Available in a growing number of languages, we … Continue reading
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Tagged #LearnFromME, #WorldMEday, ME factsheet, WMEA, World ME Alliance
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World ME day 2023 – theme: PEM
2023 World ME Day campaign announced From the World ME Alliance: The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people … Continue reading
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Tagged #LearnFromME, World ME Alliance, World ME Day
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Make a poster for World ME day!
World ME Day custom poster maker goes live – what will you create? Can posters, articles, posts, tweets create change? Yes, if they show how many people are impacted by ME, and what that means. People with ME, … Continue reading
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Tagged #ImplementNICEmecfs, #LearnFromME, #WorldMEday, poster, World ME Alliance
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#LearnFromME – theme for #WorldMEDay
#LearnFromME on #WorldMEday 2022 is set to be another year of a global health crisis that has caused a wave of post-viral disease, specifically the collection of symptoms known as “Long COVID” which overlap with ME. For decades … Continue reading
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Tagged #ImplementNICEmecfs, #LearnFromME, #WorldMEday, ME Awareness day, World ME Alliance, World ME Day
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Announcing the first ever World ME day – May 12th 2022
#WorldMEday 2022 The World ME Alliance, a collaborative of national organisations from across the globe, is launching World ME Day on 12th May this year. All organisations everywhere are invited to join this effort to raise awareness and campaign … Continue reading
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Tagged #LearnFromME, Florence Nightingale, long Covid, ME Awareness day, WHO, World Health Organisation, World ME Alliance, World ME Day
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