-
Latest News
- Stress management course begins Ebbw Vale 28 May 2019
- WAMES AGM 15th June 2019
- ME, CFS & chronic fatigue: three distinct entities requiring complete different approaches
- Increased risk of CFS following psoriasis in Taiwan
- Validation of impaired TRPM3 ion channel activity in natural killer cells from CFS/ME
Archives
Tag Archives: Sonya Chowdhury
IAFME sends an ‘agenda for change’ for ME to the WHO
IAFME contacts the WHO about ME The International Alliance for Myalgic Encephalomyelitis (IAFME) has produced a trans-national consensus document covering Myalgic Encephalomyelitis (M.E.). Recognition, research and respect: An agenda for change in M.E. has the support of over 60 clinicians, researchers, … Continue reading
Posted in News
Tagged Alexandra Heumber, Dr Heidi Nicholl, IAFME, International Alliance for ME, Sonya Chowdhury, WHO, World Health Organisation
Comments Off on IAFME sends an ‘agenda for change’ for ME to the WHO
AfME apologises for its role in the PACE trial & clarifies its change of position
Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading
Carers of children with ME ‘accused of fabrication’
BBC News England, 27 June 2017: Carers of children with ME ‘accused of fabrication’ Chronic Fatigue Syndrome, or ME, affects about 25,000 children in the UK A “significant number” of those caring for children with ME have been accused of … Continue reading
Posted in News
Tagged children, Fabricated or Induced Illness, FII, Isabelle Trowler, paediatric ME, Sonya Chowdhury
Comments Off on Carers of children with ME ‘accused of fabrication’
Guided graded exercise self-help plus specialist medical care (GETSET)
A new research paper on a guided graded exercise programme has received much media coverage, some support and a lot of questions and criticisms. Links to a number of these follow. A summary of the paper’s conclusions can be found in … Continue reading
Posted in News
Tagged Anton Mayer, Dr Daniel J Clauw, Dr Ellen CG Grant, Dr Ian Stirling, Dr Lucy V Clark, Francesca Pesola, GES, GETSET, Guided graded Exercise Self-help, Janice M Thomas, Mario Vergara-Williamson, Michelle Beynon, Prof Peter White, Sonya Chowdhury, Susan Mayor
Comments Off on Guided graded exercise self-help plus specialist medical care (GETSET)
UK MEGA project update on funding applications & patient advisory group
MEGA research blog post, by Sonya Chowdhury, 29 March 2017: Our latest funding application and Patient Advisory Group update An update from the Scientific Team and Patient Advisory Group. First the bad news: unfortunately our preliminary application to Wellcome, submitted … Continue reading
Posted in News
Tagged ME/CFS Epidemiology and Genomics Alliance, MEGA, Prof Julia Newton, Sonya Chowdhury
Comments Off on UK MEGA project update on funding applications & patient advisory group
AfME conference videos
Action for ME’s YouTube channel contains videos of their conference held on 18 Nov 2016 Includes: New technologies for M.E. research by Dr Warwick Dunn (University of Birmingham) Our five-year strategy for change by Sonya Chowdhury, CEO of Action for … Continue reading
Posted in News
Tagged Action for ME, Dr Warwick Dunn, Katie McMahon, Sonya Chowdhury
Comments Off on AfME conference videos
Videos of UK CFS/ME Research Collaborative conference 2016
10 videos from UK CFS/ME Research Collaborative conference in September 2016, posted on You Tube by Action for ME, 11 October 2016 Part 1: Welcome by Professor Stephen Holgate Researching a Syndrome: Findings from the UBC Complex Chronic Disease Study … Continue reading
Posted in News
Tagged Action for ME, Andrea Polli, Andreas Finkelmeyer, Dr David Patrick, Dr Esther Crawley, Jessica Van Oosterwijck, Nadia Howard-Tripp, Prof George Davey Smith, Prof Paul Little, Prof Stephen Holgate, Prof Tom Walley, Professor Tom Walley, Sonya Chowdhury, UK CFS/ME Research Collaborative, UK CMRC, Victoria Strassheim
Comments Off on Videos of UK CFS/ME Research Collaborative conference 2016
Clear need for ME research says new report
ME Research UK article, 29 September 2016: ME/CFS research funding: an overview of activity by major institutional funders included on the Dimensions database: A report into the funding of ME/CFS by major institutional funders over the past decade was unveiled … Continue reading
Posted in News
Tagged biomedical research, ME Research UK, Medical Research Council, MRC, Prof Stephen, Sonya Chowdhury, UK CFS/ME Research Collaborative, UK CMRC
Comments Off on Clear need for ME research says new report
Close to collapse – Shocking report exposes failings in ME social care
Shocking’ report exposes failings in ME social care, By Raya Al Jadir in Disability News Service, November 13, 2015 A tiny proportion of disabled people with the neurological condition ME are receiving the social care they could be entitled to, according to … Continue reading
Posted in News
Tagged Action for ME, Catherine Hale, Close to collapse report, social care, Sonya Chowdhury
Comments Off on Close to collapse – Shocking report exposes failings in ME social care
