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‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with CFS/ME
Research abstract: ‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with chronic fatigue syndrome, by Berit Widerøe Njølstad, Anne Marit Mengshoel & Unni Sveen in Scand J Occup Ther. 2018 Apr 1:1-10. … Continue reading
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Tagged adolescents, Anne Marit Mengshoel, Berit Widerøe Njølstad, illness experience, NorCAPITAL project, teenagers, Unni Sveen, young people
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‘Betwixt & between’ liminality in recovery stories from people with ME or CFS
Research abstract: This paper explores experiences of 16 people claiming to have recovered from Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) using the concept of liminality. Liminality describes the status of those falling between socially recognised and medically sanctioned categories, and illuminates both … Continue reading
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Tagged illness behaviour, illness experience, Kate Huszar, liminality, Prof Brian Brown, recovery, Rosemary Chapman
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What matters to children with CFS/ME? devising a PROM
Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading
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Tagged adolescents, children, Dr Esther Crawley, illness experience, Patient-Reported Outcome Measures, PROMS, teenagers
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