Tag Archives: illness experience

‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with CFS/ME

Posted on 04/26/2018 by wames

Research abstract: ‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with chronic fatigue syndrome, by Berit Widerøe Njølstad, Anne Marit Mengshoel & Unni Sveen in Scand J Occup Ther. 2018 Apr 1:1-10. … Continue reading →

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‘Betwixt & between’ liminality in recovery stories from people with ME or CFS

Posted on 03/06/2017 by wames

Research abstract: This paper explores experiences of 16 people claiming to have recovered from Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) using the concept of liminality. Liminality describes the status of those falling between socially recognised and medically sanctioned categories, and illuminates both … Continue reading →

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What matters to children with CFS/ME? devising a PROM

Posted on 10/13/2015 by wames

Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading →

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