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Latest News
- ME/CFS: whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS
- Recovery from paediatric CFS – definitions are highly variable
- Long COVID & ME/CFS – a systemic review & comparison of clinical presentation & symptomatology
- Development of an inertial measurement-based assessment of disease severity in CFS
- Case report: angina simultaneously diagnosed with the recurrence of ME/CFS
Archives
Tag Archives: young people
NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient
NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice. The draft NICE guideline is open … Continue reading
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Tagged children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, paediatric ME, severe ME, young people
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Online talk: ME/CFS and long Covid in children & young people with Dr Nigel Speight, 24 Sep 2020
Sheffield ME & FM Group: Online talk: ME/cfs in children and young people – Dr Nigel Speight This talk is especially relevant to families supporting young people and those not getting the support they need from schools and services. It will … Continue reading
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Tagged children, Dr Nigel Speight, long Covid, paediatric ME, Sheffield ME & FM Group, Tymes Trust, young people
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A qualitative exploration of treatment preference in paediatric randomised control trials
A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading
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Tagged children, Lucy Beasant, paediatric CFS, Randomised Controlled Trials, RCT, treatment preference, young people
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APPG on ME – virtual meeting 16 June 2020 – focus on young people
The All-Party Parliamentary Group (APPG) on ME meeting Tuesday 16th June 2020 A virtual meeting of the APPG will take place on Tuesday 16th June 10am and will discuss issues relating to young people with ME, including diagnosis, medical … Continue reading
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Tagged All Party Parliamentary Group, APPG, Carol Monaghan MP, Dr Nigel Speight, Tony Crouch, young people
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The prevalence of pediatric ME/CFS in a community‑based sample
The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in a community‑based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler & Shaun Bhatia in Child & Youth Care Forum, 23 January 2020 [doi.org/10.1007/s10566-019-09543-3] Research … Continue reading
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Tagged Ben Z Katz, Chelsea Torres, Chicago, children, diagnosis, Joseph Cotler, Madison L Sunnquist, paediatric ME, prevalence, Prof Leonard Jason, Shaun Bhatia, young people
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Paediatric patients with ME/CFS value understanding & help to move on with their lives
Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054] Abstract: Aim: The aim of this study was to document … Continue reading
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Tagged children, education support, Katherine Rowe, paediatric ME, self management, teenagers, young people
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Survey of the experiences of children & young people with ME for NICE
The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading
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Tagged Action for ME, adolescents, AfME, children, National Institute for Health and Care Excellence, NICE guideline ME/CFS, Oxford Brookes University, survey, teenagers, young people
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Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16
Depressive symptoms at age 9-13 and chronic disabling fatigue at age 16: a longitudinal study, by Simon M Collin, Tom Norris, Carol Joinson, Maria E Loades, Glyn Lewis, Stephen A Stansfeld, Esther Crawley in Journal of Adolescence Vol 75, pp … Continue reading
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Tagged adolescents, ALSPAC, Avon Longitudinal Study of Parents and Children, Carol Joinson, chronic fatigue, depression, Dr Esther Crawley, Glyn Lewis, Maria E Loades, paediatrics, Simon M Collin, Stephen A Stansfeld, teenagers, Tom Norris, young people
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