Tag Archives: young people

Research: Adults with ME/CFS report high rates of youth symptoms

Posted on 03/27/2023 by wames

Adults recall childhood experience of ME/CFS   Prof Leonard Jason’s team in Chicago surveyed 617 adults and found a surprisingly high number (43%) had begun feeling ill while adolescents. They analysed their symptoms and experiences and found common themes, which … Continue reading →

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CFS/ME in adolescents: Practical guidance & management challenges

Posted on 01/10/2023 by wames

Practical guidance and management challenges of ME/CFS in adolescents Australian paediatrician Dr Katherine Rowe has written a paper for practitioners, based on her own experience, which reviews the current understanding of ME/CFS and highlights effective management strategies for adolescents. As … Continue reading →

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Research: Long-term C-19 sequelae in adolescents: the overlap with OI & ME/CFS

Posted on 03/28/2022 by wames

Long-term COVID 19 sequelae in adolescents: the overlap with orthostatic intolerance and ME/CFS, by Amanda K Morrow, Laura A Malone, Christina Kokorelis, Lindsay S Petracek, Ella F Eastin, Katie L Lobner, Luise Neuendorff & Peter C Rowe in Curr Pediatr … Continue reading →

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A qualitative exploration of treatment preference in paediatric randomised control trials

Posted on 06/23/2020 by wames

A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading →

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The prevalence of pediatric ME/CFS in a community‑based sample

Posted on 01/28/2020 by wames

The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome  in a community‑based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler & Shaun Bhatia in Child & Youth Care Forum, 23 January 2020 [doi.org/10.1007/s10566-019-09543-3]   Research … Continue reading →

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Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking

Posted on 01/23/2020 by wames

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking, by Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L Haywood, Alison Shaw & Esther … Continue reading →

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Paediatric patients with ME/CFS value understanding & help to move on with their lives

Posted on 01/13/2020 by wames

Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054]   Abstract: Aim: The aim of this study was to document … Continue reading →

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Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16

Posted on 08/16/2019 by wames

Depressive symptoms at age 9-13 and chronic disabling fatigue at age 16: a longitudinal study, by Simon M Collin, Tom Norris, Carol Joinson, Maria E Loades, Glyn Lewis, Stephen A Stansfeld, Esther Crawley in  Journal of Adolescence Vol 75, pp … Continue reading →

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Clinical symptoms & markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection

Posted on 06/14/2019 by wames

Clinical symptoms and markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection: an exploratory cross-sectional study, by Miriam Skjerven Kristiansen, Julie Stabursvik, Elise Catriona O’Leary, Maria Pedersen, Tarjei Tørre Asprusten, Truls Leegaard, Liv Toril Osnes, Trygve Tjade, … Continue reading →

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Meeting the educational needs of young ME/CFS patients: role of the treating physician

Posted on 04/10/2019 by wames

Meeting the educational needs of young, ME/CFS patients: role of the treating physician, by Faith R. Newton in Front. Pediatr., 02 April 2019 https://doi.org/10.3389/fped.2019.00104   Article introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling, chronic disease characterized by the … Continue reading →

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