Tag Archives: young people

A qualitative exploration of treatment preference in paediatric randomised control trials

Posted on June 23, 2020 by wames

A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading →

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APPG on ME – virtual meeting 16 June 2020 – focus on young people

Posted on June 10, 2020 by wames

The All-Party Parliamentary Group (APPG) on ME meeting Tuesday 16th June 2020   A virtual meeting of the APPG will take place on Tuesday 16th June 10am and will discuss issues relating to young people with ME, including diagnosis, medical … Continue reading →

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The prevalence of pediatric ME/CFS in a community‑based sample

Posted on January 28, 2020 by wames

The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome  in a community‑based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler & Shaun Bhatia in Child & Youth Care Forum, 23 January 2020 [doi.org/10.1007/s10566-019-09543-3]   Research … Continue reading →

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Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking

Posted on January 23, 2020 by wames

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking, by Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L Haywood, Alison Shaw & Esther … Continue reading →

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Paediatric patients with ME/CFS value understanding & help to move on with their lives

Posted on January 13, 2020 by wames

Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054]   Abstract: Aim: The aim of this study was to document … Continue reading →

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Survey of the experiences of children & young people with ME for NICE

Posted on September 16, 2019 by wames

The experiences of children and young people with ME are needed to help create a new guideline for how health professionals in England and Wales diagnose and support them and their family. If you are aged between 9 and 18 … Continue reading →

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Depressive symptoms at age 9-13 & chronic disabling fatigue at aged 16

Posted on August 16, 2019 by wames

Depressive symptoms at age 9-13 and chronic disabling fatigue at age 16: a longitudinal study, by Simon M Collin, Tom Norris, Carol Joinson, Maria E Loades, Glyn Lewis, Stephen A Stansfeld, Esther Crawley in  Journal of Adolescence Vol 75, pp … Continue reading →

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Clinical symptoms & markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection

Posted on June 14, 2019 by wames

Clinical symptoms and markers of disease mechanisms in adolescent chronic fatigue following Epstein-Barr virus infection: an exploratory cross-sectional study, by Miriam Skjerven Kristiansen, Julie Stabursvik, Elise Catriona O’Leary, Maria Pedersen, Tarjei Tørre Asprusten, Truls Leegaard, Liv Toril Osnes, Trygve Tjade, … Continue reading →

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Mindfulness course for young people, 12 Jun -14 Aug 2019

Posted on May 20, 2019 by wames

Mindfulness course for young people in Llangefni Llangefni:  Wednesdays 4 – 4.50 pm,      12 June — 14 August 2019 A fun, engaging and useful mindfulness course for young people. It is taught with striking visuals, film clips and activities that … Continue reading →

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Meeting the educational needs of young ME/CFS patients: role of the treating physician

Posted on April 10, 2019 by wames

Meeting the educational needs of young, ME/CFS patients: role of the treating physician, by Faith R. Newton in Front. Pediatr., 02 April 2019 https://doi.org/10.3389/fped.2019.00104   Article introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling, chronic disease characterized by the … Continue reading →

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