Tag Archives: young people

Research: Adults with ME/CFS report high rates of youth symptoms

Adults recall childhood experience of ME/CFS   Prof Leonard Jason’s team in Chicago surveyed 617 adults and found a surprisingly high number (43%) had begun feeling ill while adolescents. They analysed their symptoms and experiences and found common themes, which … Continue reading

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CFS/ME in adolescents: Practical guidance & management challenges

Practical guidance and management challenges of ME/CFS in adolescents Australian paediatrician Dr Katherine Rowe has written a paper for practitioners, based on her own experience, which reviews the current understanding of ME/CFS and highlights effective management strategies for adolescents. As … Continue reading

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Research: Long-term C-19 sequelae in adolescents: the overlap with OI & ME/CFS

Long-term COVID 19 sequelae in adolescents: the overlap with orthostatic intolerance and ME/CFS, by Amanda K Morrow, Laura A Malone, Christina Kokorelis, Lindsay S Petracek, Ella F Eastin, Katie L Lobner, Luise Neuendorff & Peter C Rowe in Curr Pediatr … Continue reading

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NICE draft ME/CFS guideline proposes tailored, individualised approach to care in partnership with patient

NICE says there is no ‘one size fits all’ approach to managing ME/CFS symptoms. It stresses the need for a tailored, individualised approach to care that allows joint decision making and informed choice.   The draft NICE guideline is open … Continue reading

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Online talk: ME/CFS and long Covid in children & young people with Dr Nigel Speight, 24 Sep 2020

Sheffield ME & FM Group: Online talk: ME/cfs in children and young people – Dr Nigel Speight   This talk is especially relevant to families supporting young people and those not getting the support they need from schools and services. It will … Continue reading

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A qualitative exploration of treatment preference in paediatric randomised control trials

A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading

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APPG on ME – virtual meeting 16 June 2020 – focus on young people

The All-Party Parliamentary Group (APPG) on ME meeting Tuesday 16th June 2020   A virtual meeting of the APPG will take place on Tuesday 16th June 10am and will discuss issues relating to young people with ME, including diagnosis, medical … Continue reading

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The prevalence of pediatric ME/CFS in a community‑based sample

The prevalence of pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome  in a community‑based sample, by Leonard A Jason, Ben Z Katz, Madison Sunnquist, Chelsea Torres, Joseph Cotler & Shaun Bhatia in Child & Youth Care Forum, 23 January 2020 [doi.org/10.1007/s10566-019-09543-3]   Research … Continue reading

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Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking, by Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L Haywood, Alison Shaw & Esther … Continue reading

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Paediatric patients with ME/CFS value understanding & help to move on with their lives

Paediatric patients with myalgic encephalomyelitis/chronic fatigue syndrome value understanding and help to move on with their lives, by Katherine Rowe in Acta Paediatrica, First published: 18 December 2019 [https://doi.org/10.1111/apa.15054]   Abstract: Aim: The aim of this study was to document … Continue reading

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