Author Archives: wames
Video lecture on clinical case definitions by Prof Jason
Youtube video published 17 March 2017: Leonard Jason’s Presentation on Case Definitions to European Network The issue of research and clinical case definitions were discussed in this 30 min March 2-017 talk, and then the European scientists asked questions for the remaining 30 … Continue reading
How a study about CFS was doctored, adding to pain and stigma
The Conversation blog, by Steven Lubet, 23 March 2017: How a study about Chronic Fatigue Syndrome was doctored, adding to pain and stigma The public relies on scientists to report their findings accurately and completely, but that does not always happen. … Continue reading
BBC’s Week in week out reports on the crisis in home care in Wales
BBC Wales TV show Week In Week Out: The Real Cost of Caring The pressure is on our social services to deliver care to some of the most vulnerable in society. Week In, Week Out investigates the challenges facing those … Continue reading
Cognitive neuroscientists use electrical imaging to search for cause of CFS
DePaul University press release, by Jordyn Holliday, 16 March 2017: Cognitive neuroscientists use systems level approach to search for cause of chronic fatigue syndrome Using electrical neuroimaging, a team of cognitive neuroscientists at the Center for Community Research at DePaul University, is working … Continue reading
Do graded activity therapies cause harm in CFS?
Article abstract: Reporting of harms was much better in the PACE (Pacing, graded Activity, and Cognitive behavioural therapy: a randomised Evaluation) trial than earlier chronic fatigue syndrome trials of graded exercise therapy and cognitive behavioural therapy. However, some issues remain. The … Continue reading
PACE trial claims of recovery are not justified by the data: a rejoinder to Sharpe, Chalder, Johnson, Goldsmith & White
Following a response from the PACE trial researchers to their re-analysis from the PACE trial researchers Wilshire et al have published a reply: Article abstract: BACKGROUND: Recently, we critically evaluated the claim from the PACE trial that cognitive behavioural therapy (CBT) and graded … Continue reading
The full independent re-analysis of the PACE Trial now available on open access
ME Association blog post, 22 March 2017: Thanks to the MEA, you can now read the whole independent re-analysis of the PACE Trial recovery paper, 22 March 2017 The independent re-analysis of the PACE Trial recovery paper emerged from behind the … Continue reading
Clinically proven mtDNA mutations are not common in CFS
Research abstract: Background: Chronic Fatigue Syndrome (CFS) is a prevalent debilitating condition tat affects approximately 250,000 people in the UK. There is growing interest in the role of mitochondrial function and mitochondrial DNA (mtDNA) variation in CFS. It is now … Continue reading
Bodily distress syndrome – the latest ‘term’ for CFS, FM, IBS etc.
Mail online article, by Roger Dobson, 20 March 2017: Why doctors can no longer dismiss symptoms as ‘all in the mind’: Experts reveal medically unexplained conditions can still have a physical cause In as many one fifth of cases, doctors … Continue reading
Activin B – a potential biomarker for CFS/ME?
Research abstract: Background: Investigations of activin family proteins as serum biomarkers for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). CFS/ME is a disease with complex, wide-ranging symptoms, featuring persistent fatigue of 6 months or longer, particularly post exertion. No definitive biomarkers are … Continue reading
