Author Archives: wames
ME awareness – wear, post or tweet a blue ribbon
Wear a blue ribbon on May 12th, International ME Awareness Day, whenever you go out, post or tweet The charity BRAME (Blue Ribbon Awareness for ME) sells blue ribbons as a triple symbol of hope for all those affected by … Continue reading
PLOSone journal ‘expression of concern’ about PACE authors’ unwillingness to share data
Expression of Concern: Adaptive Pacing, Cognitive Behaviour Therapy, Graded Exercise, and Specialist Medical Care for Chronic Fatigue Syndrome: A Cost-Effectiveness Analysis, by the PLOS ONE Editors in PLoS ONE 12(5)e0177037 [Published: May 2, 2017] Several readers have raised concerns about … Continue reading
Differences in ME & CFS symptomology in patients with normal and abnormal exercise test results
Differences in ME and CFS symptomology in patients with normal and abnormal exercise test results, by Stephanie L McManimen and Leonard A Jason in International Journal of Neurology and Neurotherapy 2017, vol 4 issue 1, 4:066 [Published: March 21, 2017] Research … Continue reading
WAMES supports proposal to continue classifying ME as neurological
WAMES supports proposal to classify ME as neurological WAMES has submitted our comment on a proposal for the revision of the World Health Organisation’s International Classification of Diseases (ICD): The Welsh Association of ME & CFS Support (WAMES) supports the proposal … Continue reading
ME Awareness – Missing years
Missing years – ME/CFS Awareness These squares have been lovingly crafted in a bid to raise awareness of the little understood but devastating diseases known as ME (Myalgic), Chronic Fatigue Syndrome and Fibromyalgia. They show the number of years that … Continue reading
Regular use of saline may reduce symptoms, boost energy in POTS (& ME/CFS?)
Health rising blog post by Cort Johnson, 15 April 2017: Regular use of saline may reduce symptoms, boost energy in POTS (& ME/CFS?) ME/CFS and POTS patients have used saline for years to feel better and recover from relapses. That’s … Continue reading
Group for parents of children with any health condition meets Caldicot, 3 May 2016
Group for Parents of Children with any Health Condition Having a child with additional health needs can be challenging at times. Being able to share difficulties in a supportive and accepting group can help parents feel more confident. Meetings to … Continue reading
ME/CFS linked to imbalanced microbiome
Columbia University Mailman School of Public Health Press release, 26 April 2017: Chronic fatigue syndrome linked to imbalanced microbiome Scientists identify abnormal levels of specific gut bacteria in individuals with chronic fatigue syndrome, including those with and without co-morbid IBS … Continue reading
BBC Woman’s hour interview with woman with ME
BBC iplayer, 24 April 2017: BBC Radio 4 Woman’s hour programme: Interview with a female actor from Glasgow who has had ME since she was 9. She discusses how she became ill and gives a very good overview of how … Continue reading
