Author Archives: wames
Viewpoint: ME/CFS: when suffering is multiplied
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: when suffering is multiplied, by Anthony L Komaroff in Healthcare 2021, 9(7), 919 [doi.org/10.3390/healthcare9070919] 20 July 2021 (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected) Article abstract: Myalgic encephalomyelitis/chronic fatigue … Continue reading
Dr Nina Muirhead says: Doctors believe in ME
Royal College of Physicians blog: Doctors believe in ME, 15 July 2021 In a follow up to her 2019 blog post, Dr Nina Muirhead discusses a recent surge in clinical interest in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In 2019, … Continue reading
Top tips – Coping with hot weather
Top tips for ME/CFS: Coping with heat and hot weather When memories of cold and wet weather are still fresh in the mind it is a relief to have some dry sunny weather. However many people with ME and … Continue reading
Research: Causal attributions & perceived stigma for ME/CFS
Causal attributions and perceived stigma for myalgic encephalomyelitis/ chronic fatigue syndrome, by Laura Froehlich, Daniel BR Hattesohl, Joseph Cotler, Leonard A Jason , Carmen Scheibenbogen, Uta Behrends in Journal of Health Psychology, July 9 2021 [doi.org/10.1177/13591053211027631] Research abstract: Myalgic … Continue reading
Survey – Do GPs in Wales use NICE guidance?
WAMES survey – NICE guidance in Wales Survey – Do GPs in Wales use NICE guidance? People with ME are looking forward to the publication of the revised NICE guidance, expected on 18th August 2021, which hopefully doesn’t recommend … Continue reading
Research: Potential therapeutic benefit of Low Dose Naltrexone in ME/CFS
Potential Therapeutic Benefit of Low Dose Naltrexone in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: role of Transient Receptor Potential Melastatin 3 Ion channels in pathophysiology and treatment, by Helene Cabanas, Katsuhiko Muraki, Natalie Eaton-Fitch, Donald Ross Staines and Sonya Marshall-Gradisnik in … Continue reading
Research: Shadow burden of undiagnosed ME/CFS on society (Latvia)
Shadow Burden of undiagnosed Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) on society: retrospective and prospective—in light of COVID-19, by Diana Araja, Uldis Berkis, Asja Lunga and Modra Murovska in J. Clin. Med. 2021, 10(14), 3017; [doi.org/10.3390/jcm10143017] 6 July 2021 (This article … Continue reading
Health Minister delegates reply re ME/CFS
Welsh Government replies re ME/CFS and long COVID WAMES wrote to the Health Minister, Eluned Morgan MS, on 7th June about ME and long COVID. She is the first Health Minister to fail to reply herself. Instead she delegated … Continue reading
Research: Tolerability & efficacy of s.c. IgG self-treatment in ME/CFS patients with IgG/IgG subclass deficiency
Tolerability and efficacy of s.c. IgG self-treatment in ME/CFS patients with IgG/IgG subclass deficiency: a proof-of-concept study, by Carmen Scheibenbogen, Franziska Sotzny, Jelka Hartwig, Sandra Bauer, Helma Freitag, Kirsten Wittke, Wolfram Doehner, Nadja Scherbakov, Madlen Loebel, Patricia Grabowski in J … Continue reading
