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Research: The depressing truth about depression scales for people with chronic invisible illness
The depressing truth about depression scales for people with chronic invisible illness, by CL Pederson, BM Wagner Research conclusions: People with chronic invisible illnesses like POTS, CFS/ME, EDS, MCAS, and fibromyalgia have numerous and often severe somatic symptoms related … Continue reading
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Tagged BM Wagner, Chronic illness, CL Pedersen, depression, EDS, Ehlers-Danlos syndrome, Fibromyalgia, FM, invisible illness, Mast Cell Activation Syndrome, MCAS, postural orthostatic tachycardia syndrome, POTS, somatic symptoms
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Research: ME/CFS is not influenced by the presence or absence of joint hypermobility
The presentation of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is not influenced by the presence or absence of joint hypermobility, by Sarah K Vogel, Isabelle R Primavera, Colleen L Marden, Marissa AK Flaherty, Richard L Violand, Peter C Rowe in the Journal of … Continue reading
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Tagged Beighton score, Colleen L Marden, Dr Peter Rowe, Ehlers-Danlos syndrome, Isabelle R Primavera, joint hypermobility, Marissa AK Flaherty, Richard L Violand, Sarah K Vogel
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Report: Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness
Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness, by Catherine Hale, Stef Benstead, Jenny Lyus, Evan Odell and Anna Ruddock. Centre for Welfare reform: April 2020 DRILL Blog post: Energy impairment and disability inclusion … Continue reading
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Tagged Anna Ruddock, Catherine Hale, Chronic illness, Chronic Illness Inclusion Project, Disability Research on Independent Living & Learning, disabled, discrimination, DRILL, Ehlers-Danlos syndrome, energy impairment, Evan Odell, FM, invisible illness, Jenny Lyus, Multiple Sclerosis, social model, Stef Benstead
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The link between idiopathic intracranial hypertension, FM, & CFS: exploration of a shared pathophysiology
The link between idiopathic intracranial hypertension, fibromyalgia, and chronic fatigue syndrome: exploration of a shared pathophysiology, by Mieke Hulens, Ricky Rasschaert, Greet Vansant, Ingeborg Stalmans, Frans Bruyninckx, Wim Dankaerts in Journal of Pain Research Vol 2018:11 Pages 3129—3140 [Published 10 December … Continue reading
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Tagged chronic pain, Ehlers-Danlos syndrome, Fibromyalgia, FM, Franz Bruyninckx, Greet Vansant, idiopathic intracranial hypertension, IICH, Ingeborg Stalmans, Mieke Hulens, Ricky Rasschaert, Wim Dankaerts
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