Category Archives: News

miRNA profiling of circulating EVs in ME/CFS

Posted on 12/03/2018 by wames

miRNA profiling of circulating EVs in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) by Eloy Almenar-Pérez, Lubov Nathanson, Teresa Sánchez-Fito, Leonor Sarria, Germán Cerdá-Olmedo, Elisa Oltra  in Journal of Extracellular Vesicles, suppl. Supplement 1; Abingdon Vol. 7,  (2018): 139.   Research abstract: Background: … Continue reading →

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Online pacing tutorial begins January 2019

Posted on 11/30/2018 by wames

Online Pacing Tutorial US based ME/CFS & Fibromyalgia Self-help program hold quarterly online tutorials to teach the basics of pacing. Open to to all English language speakers 7 week course Offered quarterly and conducted via email list server, the class is … Continue reading →

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Dr Anne McIntyre RIP

Posted on 11/27/2018 by wames

A long time advocate and sufferer of ME, Dr Anne McIntyre, died on Saturday 24th November 2018.  She had been living with rheumatoid arthritis for many years and developed pulmonary fibrosis as a complication of that. Her book M.E. Chronic … Continue reading →

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Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS

Posted on 11/26/2018 by wames

Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, by C (Linda) M van Campen, Peter C Rowe and Frans C Visser in Front. Pediatr., 16 November 2018 Introduction: Orthostatic intolerance is common among … Continue reading →

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Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms

Posted on 11/23/2018 by wames

Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms, by C (Linda) Van Campen,  Peter C Rowe and Frans C Visser in Front. Pediatr.  Oct 2018 Introduction: Conflicting data have been published on the reduction of circulating blood … Continue reading →

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A poem about Me and M.E – One stupid dot

Posted on 11/22/2018 by wames

‘What’s up TV’ presents a 2 minute poem by Stacy Hart: Me and M.E, how ‘One Stupid Dot’ makes all the difference Stacy’s blog: Mama Chill…Stacy Hart…Runnin On Empty

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The development of the DePaul symptom questionnaire: original, expanded, brief & pediatric versions

Posted on 11/22/2018 by wames

The development of the DePaul symptom questionnaire: Original, expanded, brief and pediatric versions, by Leonard A Jason, Madison Sunnquist in Frontiers in Pediatrics, 6 Nov 2018 One of the key requirements of a reliable case definition is the use of standardized procedures for assessing … Continue reading →

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CD24 expression & B cell maturation shows a novel link with energy metabolism: potential implications for patients with ME/CFS

Posted on 11/21/2018 by wames

CD24 expression and B cell maturation shows a novel link with energy metabolism: potential implications for patients with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome , by Fane K. Mensah, Christopher W Armstrong, Venkat Reddy, Amolak S Bansal, Saul Berkovitz, Maria Leandro … Continue reading →

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Workwell’s two-day exercise tests & breaking the deconditioning dilemma in ME/CFS

Posted on 11/21/2018 by wames

Workwell’s two-day exercise tests and breaking the deconditioning dilemma in Chronic Fatigue Syndrome (ME/CFS) by Cort Johnson in Health rising blog, 19 Nov 2018 The first word in the first sentence of the paper says it all: “Concise methodological directions for … Continue reading →

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Associations between clinical symptoms, plasma norepinephrine & deregulated immune gene networks in subgroups of adolescents with CFS

Posted on 11/19/2018 by wames

Associations between clinical symptoms, plasma norepinephrine and deregulated immune gene networks in subgroups of adolescent with Chronic Fatigue Syndrome, by Chinh Bkrong Nguyen, Surendra Kumar, Manuela Zucknick, Vessela N Kristensen, Johannes Gjerstad, Hilde Nilsen, Vegard BruunWyller, in Brain Behav Immun. 2018 … Continue reading →

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