Category Archives: News

Confirmatory factor analysis of a ME & CFS stigma scale

Confirmatory factor analysis of a myalgic encephalomyelitis and chronic fatigue syndrome stigma scale, by Julia M Terman, Jessica M Awsumb, Joseph Cotler, Leonard A Jason in Journal of Health Psychology, September 2018 [Published online: September 5, 2018] Research abstract: This study adapted a … Continue reading

Posted in News | Tagged , , , , | Comments Off on Confirmatory factor analysis of a ME & CFS stigma scale

Using the internet to cope with CFS/ME in adolescence

Using the internet to cope with chronic fatigue syndrome/ myalgic encephalomyelitis in adolescence: a qualitative study, by Amberly Brigden, Julie Barnett, Roxanne Morin Parslow, Lucy Beasant, Esther Crawley in BMJ Paediatrics Open Vol. 2, #1 [Published: August 23, 2018] Background: Adolescents are increasingly using online resources … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on Using the internet to cope with CFS/ME in adolescence

Passive standing tests for the office diagnosis of postural tachycardia syndrome: New methodological considerations

Passive standing tests for the office diagnosis of postural tachycardia syndrome: new methodological considerations, by Maria Roma, Colleen L. Marden & Peter C. Rowe in Fatigue: Biomedicine, Health & Behavior 2018 [Published online: 25 Aug 2018] Research abstract: Background: Passive standing tests … Continue reading

Posted in News | Tagged , , , , , , , , | Comments Off on Passive standing tests for the office diagnosis of postural tachycardia syndrome: New methodological considerations

Operationalizing substantial reduction in functioning among young adults with CFS

Research abstract: Operationalizing Substantial Reduction in Functioning Among Young Adults with Chronic Fatigue Syndrome, by Kristen D. Gleason, Jamie Stoothoff, Damani McClellan, Sttephanie McManimen, Taylor Thorpe, Ben Z. Katz, Leonard A. Jason in International Journal of Behavioral Medicine 2018 pp1-8 [Published online 5 June 2018] Purpose: Chronic fatigue syndrome and myalgic … Continue reading

Posted in News | Tagged , , , , , , , , , , , | Comments Off on Operationalizing substantial reduction in functioning among young adults with CFS

Myalgic Encephalomyelitis (ME) or what? An operational definition

Myalgic Encephalomyelitis (ME) or what? An operational definition, by Frank Twisk in Diagnostics 2018, 8(3), 64 [Published: 8 September 2018] Article abstract:  Myalgic encephalomyelitis (ME), identified as a new clinical entity with distinctive features in 1956, was originally considered as a neuromuscular … Continue reading

Posted in News | Tagged , | Comments Off on Myalgic Encephalomyelitis (ME) or what? An operational definition

Cardiopulmonary exercise test methodology for assessing exertion intolerance in ME/CFS

Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in ME/CFS by Staci Stevens, Chris Snell, Jared Stevens, Betsy Keller and J Mark VanNess in Frontiers in Pediatrics, 4 September 2018 Background: Concise methodological directions for administration of serial cardiopulmonary exercise testing (CPET) … Continue reading

Posted in News | Tagged , , , , , , , , , | Comments Off on Cardiopulmonary exercise test methodology for assessing exertion intolerance in ME/CFS

Responses in BMJ to Prof Sharpe on PACE trial

 Pressure grows on Lancet to review “flawed” PACE trial On 22 August Ingrid Torjesen  wrote a news item in the British Medical Journal about an article in the Times which highlighted the call to review the results of the PACE trial into … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on Responses in BMJ to Prof Sharpe on PACE trial

Trial By Error: Professor Edwards’ letter to MRC’s Fiona Watt

Virology blog post, by David Tuller, DrPH, 28 August 2018: Trial By Error: Professor Edwards’ Letter to MRC’s Fiona Watt Jonathan Edwards, an emeritus professor of medicine at University College London, recently sent a letter to Professor Fiona Watt, executive … Continue reading

Posted in News | Tagged , , , , , | Comments Off on Trial By Error: Professor Edwards’ letter to MRC’s Fiona Watt

AfME apologises for its role in the PACE trial & clarifies its change of position

Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading

Posted in News | Tagged , , , , , , , , , , , | 1 Comment

Loss of transient receptor potential Melastatin 3 ion channel function in natural killer cells from CFS/ME

Loss of Transient Receptor Potential Melastatin 3 ion channel function in natural killer cells from CFS/ME patients by Hélène Cabanas, Katsuhiko Muraki, Natalie Eaton, Cassandra Balinas, Donald Staines and Sonya Marshall-Gradisnik in Molecular Medicine 2018 24:44 [Published: 14 August 2018] Research abstract: … Continue reading

Posted in News | Tagged , , , , , , , , , , , | Comments Off on Loss of transient receptor potential Melastatin 3 ion channel function in natural killer cells from CFS/ME