Category Archives: News

For children with ME, school education can be a grave threat

Third Force News blog post, by Lesley Scott, 19 May 2017: For children with ME, school education can be a grave threat Lesley Scott explains why the Scottish Government presumption that attending school is always best can affect the health … Continue reading

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WAMES fundraising challenge – could you be a regular donor?

WAMES fundraising challenge – could you be a regular donor? WAMES needs a sustainable income, one we can rely on long term. Unfortunately nearly everything we do costs money. Currently we are spending a lot of time applying for grants, but: this … Continue reading

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Once again, the PACE authors respond to concerns with empty answers

Article abstract: Once again, the PACE authors respond to concerns with empty answers, by David Tuller in Journal of Health Psychology [Published April 27, 2017] In their response to Geraghty, the PACE investigators state that they have “repeatedly addressed” the … Continue reading

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#HelpNHSbeMEaware challenge is not just for ME Awareness week!

Thanks to those who have let us know they have been writing to their Health Boards with their experiences of NHS staff who don’t understand ME, and asking for training and awareness sessions for them. It is not too late … Continue reading

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WAMES news blog & social media update

There will be a reduced service on the WAMES news blog and social media between June and August 2017. WAMES has regretfully had to take this decision due to a reduction in the number of hours work that volunteers can give us … Continue reading

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PACE-GATE: An alternative view on a study with a poor trial protocol

Article abstract: PACE-GATE: An alternative view on a study with a poor trial protocol by Bart Stouten in Journal of Health Psychology [Published 12 May 2017] The controversies surrounding the effectiveness of cognitive behavioural therapy and graded exercise therapy for chronic … Continue reading

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Mast Cell Activation Disorder & ME/CFS

Notes on Mast Cell Activation Disorder and ME/CFS, by Margaret Williams, 14 April 2017 Few would dispute that the immunology of ME/CFS is complex and that the findings presented in the literature sometimes appear to be inconsistent. Whilst much has been … Continue reading

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Health care use by patients before & after a diagnosis of CFS/ME

Research abstract: Health care resource use by patients before and after a diagnosis of chronic fatigue syndrome (CFS/ME): a clinical practice research datalink study, by Simon M. Collin, Inger J. Bakken, Irwin Nazareth, Esther Crawley, Peter D. White in BMC Family Practice 2017 … Continue reading

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Betsi Cadwaladr Health Board invites you to ‘join the conversation’ in North Wales

Betsi Cadwaladr Health Board says ‘Talk to us’ This is a general invitationl to let the Health Board know which issues concern you. The Health Board appointed a clinical lead for ME and CFS some years ago, but so far … Continue reading

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Altered B cells found in whole blood gene expression in adolescent CFS

Research abstract Whole blood gene expression in adolescent chronic fatigue syndrome: an exploratory cross-sectional study suggesting altered B cell differentiation and survival, by Chinh Bkrong Nguyen, Lene Alsøe, Jessica M. Lindvall, Dag Sulheim, Even Fagermoen, Anette Winger, Mari Kaarbø, Hilde … Continue reading

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