Category Archives: News
Anxiety – autonomic nervous system in ME/CFS to blame?
Health rising blog post, by Cort Johnson, Dec 10, 2016: The Anxiety Question in Chronic Fatigue Syndrome and Fibromyalgia: Is the Autonomic Nervous System to Blame? Anxiety type symptoms are common in chronic fatigue syndrome (ME/CFS), fibromyalgia, Gulf War Ilness (GWI), … Continue reading
The Clinical & Scientific Basis of ME/CFS is now free to download
A research classic from 1992 is now available to download for free (725 pages – a heavy tome) The Clinical and Scientific Basis of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Edited by Byron Hyde, M.D. – Nightingale Research Foundation, Ottawa, … Continue reading
Collection of writings about the PACE trial
Investigator bias and the PACE trial, by Steven Lubet in Journal of Health Psychology[Published online: 7 March 2017] Abstract: The PACE investigators reject Geraghty’s suggestion that the cognitive behavior therapy/graded exercise therapy trial could have been better left to researchers … Continue reading
Is health anxiety aka hypochondria common in people with CFS?
Hypochondria (health anxiety) is excessive worrying about your health, to the point where it causes great distress and affects your everyday life. Some people with health anxiety have a medical condition, which they worry about excessively. Others have medically unexplained symptoms, … Continue reading
Cytokine inhibition in CFS
Research abstract: Background: Interleukin-1 (IL-1), an important proinflammatory cytokine, is suspected to play a role in chronic fatigue syndrome (CFS). Objective: To evaluate the effect of subcutaneous anakinra versus placebo on fatigue severity in female patients with CFS. Design: Randomized, … Continue reading
Standard research criteria would aid ME/CFS research
Research abstract: Background: The Institute of Medicine (IOM) recently developed clinical criteria for what had been known as chronic fatigue syndrome. Given the broad nature of the clinical IOM criteria, there is a need for a research definition that would … Continue reading
Two year follow-up of sleep diaries & polysomnography in CFS
Research abstract: Background: Chronic fatigue syndrome (CFS) is a prevalent and debilitating symptom complex of unknown aetiology. Up to 96.8% of people with CFS report unrefreshing sleep and many describe, in qualitative interviews, changes in sleep over the course of their illness. Purpose: … Continue reading
Inquiry into loneliness & isolation closing date 10 March 2017
The Welsh Government Health, Social Care and Sport Committee has launched an inquiry into loneliness and isolation. The closing date for responses is 10 March 2017 The Committee would welcome your views on any or all of the following points: the evidence for the … Continue reading
Age Cymru Wales forecasts loneliness & isolation epidemic
WAMES is continually being made aware of the isolation people with ME can feel. Unfortunately years of limited contact with friends and family due to poor health can mean that loneliness becomes an even greater issue as people age and friends and family … Continue reading
‘Betwixt & between’ liminality in recovery stories from people with ME or CFS
Research abstract: This paper explores experiences of 16 people claiming to have recovered from Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) using the concept of liminality. Liminality describes the status of those falling between socially recognised and medically sanctioned categories, and illuminates both … Continue reading
