Category Archives: News

Hypothesis: Cerebrospinal fluid pressure increase in CFS & FM

The role of increased cerebrospinal fluid pressure in CFS and FM   Belgian researchers reviewed research literature to find characteristics signs that are shared with empty sella syndrome and suggest that moderate or intermittent increases in cerebrospinal fluid pressure are … Continue reading

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#WAMES_800 fundraising target reached!

£800 raised will keep WAMES working during 2023   Grateful thanks goes to the Carmarthenshire ME Support Group for donating £100. This means we have reached our #WAMES_800 fundraising goal and we will be able to pay bills for running … Continue reading

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Call for WHO to recognise energy limiting disabilities

World ME Alliance highlights energy limiting disabilities   As a founding member of  the World ME Alliance WAMES joins ME organisations round the world in calling for better understanding in the WHO of the challenges people with ME and long … Continue reading

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Research – active HHV-6 & EBV infection found in ME/CFS

Active viruses found in people with ME/CFS   A German US collaboration examined tissue from the bodies of people who had had ME/CFS. They found active infection from Human herpes virus (HHV) and Epstein Barr Virus (EBV) in various regions … Continue reading

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ME/CFS & Post-COVID Syndrome: a common neuroimmune ground

ME/CFS and Post-COVID syndrome – close relationship   Russian researchers analysed the wide range of symptoms in people with ME/CFS and in those with long COVID, many of  whom met the criteria for ME/CFS. The symptoms fell into the categories … Continue reading

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Neuro Cafe, Aberystwyth 30 January 2023

Ceredigion neuro cafe   A get together for people affected by neurological conditions. At Plas Antaron, Aberystwyth, SY23 1SF 11-1pm, 30 January, 27 February, 27 March 2023 Contact admin@hahav.org.uk  01970 611550

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Research: Muscle sodium overload in patients with ME/CFS

Muscle sodium content in patients with ME/CFS   A German team of researchers used magnetic resonance imaging (MRI) to measure levels of sodium in the tissues of the legs of people with ME/CFS and healthy people. Too much sodium can … Continue reading

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#WAMES_800 fundraising journey boost

£300 in donations – approaching our goal!   A BIG thank you is due to 3 people in West Wales who have donated £300 between them to keep WAMES ‘Working for ME in Wales‘! This is a big boost for … Continue reading

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Hypothesis: Multisystemic dyshomeostasis (faulty thermostat theory) in ME/CFS & PASC

Converging evidence of similar symptomatology of ME/CFS and PASC   A review article by independent researcher David Marks looks at the overlap in symptoms between ME/CFS and Long COVID and makes a speculative hypothesis about biological mechanisms. Conclusions: (1) The … Continue reading

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Research review: What causes ME/CFS: The role of the dysfunctional immune system & viral infections

Is the immune dysregulation hypothesis proven?   A European team led by Dr Amolak Bansal review a number of areas of research into ME/CFS before concluding: “After over 20 year of attempting to identify specific immune defects and infectious agents … Continue reading

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