Category Archives: News

Research review: Sleep disruption in ME/CFS

Measurable sleep disruption in ME/CFS  Australian researchers reviewed the research which used objective measures, rather than patient surveys, to uncover the type and extent of sleep disruption in ME/CFS. Adult ME/CFS patients: spend longer time in bed longer sleep onset … Continue reading

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Research review: Heart & blood dysfunction in ME/CFS

Cardiovascular and haematological pathology in ME/CFS: a role for viruses   “The circulatory system (also called the cardiovascular system) is the body system that moves blood around the body. It consists of the heart and blood vessels. The blood carries … Continue reading

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Research: 2 symptoms can identify PEM in ME/CFS

Two symptoms can accurately identify post-exertional malaise in ME/CFS   Experienced researchers into PEM at the Workwell Institute in California set out to find a way of diagnosing PEM and believe they have uncovered important clues that they now need … Continue reading

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#newWAMESwebsite – another donation received!

The new WAMES website fund continues to grow!   A big thank you to 2 south Wales donors whose £50 donation takes us to £400! It is just 7 weeks since the fundraising challenge began so we are encouraged by … Continue reading

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Research: Adults with ME/CFS report high rates of youth symptoms

Adults recall childhood experience of ME/CFS   Prof Leonard Jason’s team in Chicago surveyed 617 adults and found a surprisingly high number (43%) had begun feeling ill while adolescents. They analysed their symptoms and experiences and found common themes, which … Continue reading

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Research: Pacing with a heart rate monitor

Experience and attitudes towards Pacing using a heart rate monitor: survey results   A survey by researchers who were led by the Physios for ME group, found over 30 benefits to the use of heart rate monitors (HRM) by people … Continue reading

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Research: PEM in long COVID & ME/CFS

Post-Exertional Malaise in long COVID compared to ME/CFS   Researchers at the Bateman Horne clinic in Utah, USA asked long COVID and ME/CFS patients about PEM which they described as: “an unusual worsening of symptoms after minimal physical or mental … Continue reading

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Recovery from exercise in persons with ME/CFS

Measuring recovery from exercise in ME/CFS   US researchers used a  2-day exercise study (CPET) to discover how long it took people with ME/CFS to recover from exercise. The 80 participants with ME/CFS took an average of almost 2 weeks … Continue reading

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ME/CFS and Adferiad (Recovery) Long COVID

ME/CFS and Adferiad (Recovery) services   People in Wales, and further afield, have been expressing concern about plans to place ME/CFS services in existing Long COVID services. The Health Minister announced on the 14th March that there would be additional … Continue reading

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Research: ME/CFS is common in Long COVID patients

ME/CFS is common in PASC / long COVID   A US long COVID clinic found that 43% of PASC/ long COVID patients met the criteria for ME/CFS though they acknowledge that a larger more diverse group of patients might alter … Continue reading

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