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Latest News
- Research: ME/CFS – diverse experiences, one recognisable illness
- Research: Marginal differences found between ME/CFS & LC
- Research: Impaired recovery from exertion in ME/CFS confirmed – treatments suggested
- Nutrition management in Severe ME – parents & carers respond
- Calls for wider research into PEM in ME/CFS, Long COVID & FM
Archives
Tag Archives: #WorldMEday
Pacing my way through Pain Clinic
Avoiding PEM by pacing my way through Pain Clinic PF gives her experience of an ME/CFS friendly way of attending a Pain Clinic in south Wales. As my referral to the Pain Clinic was made during Covid lockdown I … Continue reading
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Tagged #LearnFromME, #WorldMEday, PEM
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PEM: Running out of battery & feeling intensely unwell: a carer’s perspective
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading
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Tagged #LearnFromME, #WorldMEday, carer, DecodeME study, PEM, PESE, Post Exertional Symptom Exacerbation, Post-exertional malaise, symptoms, World ME Day
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Video yourself for World ME Day 2023!
Call-to-action: Video yourself for World ME Day 2023! Follow Holly’s example and tell the world what happens when pushing harder makes you sicker, for World ME Day on May 12th. ME, or Myalgic Encephalomyelitis, is a debilitating disease that affects … Continue reading
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Tagged @wamesmecfs, @WorldMEAlliance, #LearnFromME, #WorldMEday, PEM, PESE, Post Exertional Symptom Exacerbation, Post-exertional malaise
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Make a social media poster for World ME Day 2023!
Call to action: Make your own World ME day poster Demonstrate the reality of living with ME for World ME Day 2023 on May 12th 2023. Let’s make post-exertional malaise visible Share the reality of how pushing harder can … Continue reading
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Tagged #WorldMEday, PEM, PESE, Post Exertional Symptom Exacerbation, Post-exertional malaise, World ME Alliance
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New fact sheet on ME from the WMEA
Myalgic Encephalomyelitis factsheet WAMES has been working with ME organisations around the world to produce a new fact sheet on Myalgic Encephalomyelitis (ME), with a particular focus on post-exertional malaise (PEM). Available in a growing number of languages, we … Continue reading
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Tagged #LearnFromME, #WorldMEday, ME factsheet, WMEA, World ME Alliance
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World ME Day posters launched: PEM
World ME Day posters launched exploring the 2023 theme As we approach World ME Day on May 12th, the World ME Alliance is excited to announce the launch of six new graphics that explore different aspects of post-exertional malaise … Continue reading
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Tagged #WorldMEday, ME Awareness day, PEM, Post-exertional malaise, World ME Alliance
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Make a poster for World ME day!
World ME Day custom poster maker goes live – what will you create? Can posters, articles, posts, tweets create change? Yes, if they show how many people are impacted by ME, and what that means. People with ME, … Continue reading
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Tagged #ImplementNICEmecfs, #LearnFromME, #WorldMEday, poster, World ME Alliance
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#LearnFromME – theme for #WorldMEDay
#LearnFromME on #WorldMEday 2022 is set to be another year of a global health crisis that has caused a wave of post-viral disease, specifically the collection of symptoms known as “Long COVID” which overlap with ME. For decades … Continue reading
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Tagged #ImplementNICEmecfs, #LearnFromME, #WorldMEday, ME Awareness day, World ME Alliance, World ME Day
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