Category Archives: News
Poor medical care & neglect are major factors in ME/CFS suicide
Shout about ME blog post, by Russell Logan, 14 May 2016: Suicide risk 5 times higher in ME/CFS: Poor medical care, neglect are major factors The risk of suicide among ME/CFS patients is a staggering five times higher than the … Continue reading
MEGA: new UK research alliance announces ‘big data’ study
MEGA: ME/CFS Epidemiology and Genomics Alliance: On the 13th and 14th of April 2016, experts from multiple fields came together for a ‘grand challenge’ workshop to discuss how to advance research in understanding CFS/ME. It was agreed that: Very large … Continue reading
Managing medicines – carers’ experiences needed
Can you help Carers Trust Wales to develop standardised guidance/training specifically around medicines administration for unpaid carers? Following the success of their booklet A Carers Guide to Medicine management they are asking carers to answer a questionnaire. There is also the potential … Continue reading
Chu says suicide in ME/CFS not always linked to depression and anxiety
Excerpt from article by Dr Lily Chu: Another reason I wanted to write about this topic is to encourage professionals and others to think about reasons for suicide beyond depression and anxiety. This is especially important for ME/CFS since many … Continue reading
ME Awareness blog posts 2016
Laura’s pen blog post, by Laura Chamberlain, 12 May 2016: The M.E. Adventures comic: energy and exertion #MEawareness [Introduction: Today is ME awareness day, and to make a change I thought I’d make a comic. When I decided to do this I … Continue reading
ME Awareness videos
Living with M.E – Short Documentary [a first year University project ] Aarogyamastu – Chronic fatigue Syndrome Awareness Day – 12th May 2016 – ఆరోగ్యమస్తు [Indian video] Action for ME awareness videos: What is ME? [Prof Julia Newton & Dr Gregor … Continue reading
Factors determining fatigue in CFS
Research abstract: OBJECTIVES: To explore the interrelationship of different dimensions (fatigue, neuroticism, sleep quality, global mental and physical health) in patients with chronic fatigue syndrome (CFS). METHODS Patients meeting the Fukuda criteria of CFS filled out two independent fatigue scales … Continue reading
10 things people with ME want you to know
Huffington Post UK article, by Natasha Hinde, 12 May 2016: ME awareness week: 10 important things people with ME want you to know It’s estimated that around 250,000 people in Britain are affected by ME, yet many people are still … Continue reading
Case study of immune disturbance following biotoxin exposures
Research abstract: BACKGROUND: Patients with multisymptom chronic conditions, such as refractory ulcerative colitis (RUC) and chronic fatigue syndrome (CFS), present diagnostic and management challenges for clinicians, as well as the opportunity to recognize and treat emerging disease entities. In the … Continue reading
