Tag Archives: 25% ME Group

Severe ME day- 8 August 2019

Severe ME Day – 8th of August 2019 A day to remember everyone who is suffering or who has ever suffered from severe and very severe Myalgic Encephalomyelitis. The 25% Group offers support for severe ME. They have published a … Continue reading

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August 8th 2018: Understanding & Remembrance Day for Severe ME

August 8th, 2018: Understanding and Remembrance Day for Severe ME, by Jody Smith in Phoenix Rising blog, 4 Aug 2018 Can you read these words I’ve written on this page? Good. Then you know that I am NOT an example … Continue reading

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Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands

Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading

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Severe ME Remembrance Day, 8 Aug 2016

Severe Myalgic Encephalomyelitis Understanding and Remembrance Day August 8th 2016 Why have an Understanding and Remembrance Day highlighting the plight of the severely affected? The severity of this illness often makes it impossible for people to have contact with loved … Continue reading

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Poor medical care & neglect are major factors in ME/CFS suicide

Shout about ME blog post, by Russell Logan, 14 May 2016: Suicide risk 5 times higher in ME/CFS:  Poor medical care, neglect are major factors The risk of suicide among ME/CFS patients is a staggering five times higher than the … Continue reading

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Severe ME day Saturday 8 August 2015

WAMES invites you to join with them and the 25% ME Group to raise awareness of the home care needs of people with severe ME. Many severely affected people in Wales struggle to help professionals understand the extent of their need … Continue reading

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