Category Archives: News
ME/CFS – a multisystem disorder
Research abstract: Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a complex, chronic illness that is often disabling. This paper introduces the Chronic Fatigue Initiative, which conducted a large multi-center study to more fully characterize ME/CFS and ultimately to describe and … Continue reading
Defining recovery in children
Research abstract: Aims: To describe how recovery from paediatric CFS/ME is defined, how many children recover and how long it takes. Methods: We conducted detailed literature searches of MEDLINE, EMBASE, PsycInfo and the Cochrane library, searched trial registration sites, contacted … Continue reading
The long wait for a breakthrough in CFS
Article Not over yet There hasn’t been much good news for patients with the prevalent but enigmatic disorder chronic fatigue syndrome (also referred to as myalgic encephalomyelitis). Over decades, research into the pathophysiology has failed to find convincing evidence of … Continue reading
Differences found in CFS experience in UK & USA
Research abstract: Few studies have compared symptomatology and functional differences experienced by patients with chronic fatigue syndrome (CFS) across cultures. The current study compared patients with CFS from the United States (US) to those from the United Kingdom (UK) across … Continue reading
Crowdfunded study into biomarkers for people with severe ME/CFS
The ME/CFS Crowdfunding Campaign is a new initiative to promote crowdfunding campaigns for ME/CFS research and grow the crowdfunding community. More info from the Facebook page including regular updates on the current campaigns. The first crowdfund campaign is – END ME/CFS’s ‘Big Data’ study … Continue reading
Working with uncertainty: health professionals & children with CFS/ME
Research abstract: This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working with children and adolescents. The findings suggest that a lack of a clear empirical understanding of chronic fatigue syndrome/myalgic … Continue reading
Gwyn’s sponsored walk for ME Research UK
Ex ME Sufferer Gwyn Hopkins is to walk 150 miles to raise money for charity ME Research UK. “I suffered from ME. for 5 years, at first bed bound, then in a wheelchair. I made a complete recovery by the … Continue reading
The essential features of ME & CFS need to be defined
Research abstract: Considerable debate surrounds the search for the defining features of patients with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). Current case definitions were created through clinical consensus. Failure to operationalize these case definitions has led to considerable … Continue reading
Blood test found to distinguish IBS
Research abstract Diarrhea-predominant irritable bowel syndrome (IBS) is diagnosed through clinical criteria after excluding “organic” conditions, and can be precipitated by acute gastroenteritis. Cytolethal distending toxin B (CdtB) is produced by bacteria that cause acute gastroenteritis, and a post-infectious animal … Continue reading
IOM report comment
Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An IOM Report on Redefining an Illness, by Ellen Wright Clayton MD JD in JAMA March 17, 2015, Vol 313, No. 11 Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multisystem and often long-lasting disorder, with … Continue reading
