Category Archives: News
The long wait for a breakthrough in CFS
Article Not over yet There hasn’t been much good news for patients with the prevalent but enigmatic disorder chronic fatigue syndrome (also referred to as myalgic encephalomyelitis). Over decades, research into the pathophysiology has failed to find convincing evidence of … Continue reading
Differences found in CFS experience in UK & USA
Research abstract: Few studies have compared symptomatology and functional differences experienced by patients with chronic fatigue syndrome (CFS) across cultures. The current study compared patients with CFS from the United States (US) to those from the United Kingdom (UK) across … Continue reading
Crowdfunded study into biomarkers for people with severe ME/CFS
The ME/CFS Crowdfunding Campaign is a new initiative to promote crowdfunding campaigns for ME/CFS research and grow the crowdfunding community. More info from the Facebook page including regular updates on the current campaigns. The first crowdfund campaign is – END ME/CFS’s ‘Big Data’ study … Continue reading
Working with uncertainty: health professionals & children with CFS/ME
Research abstract: This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working with children and adolescents. The findings suggest that a lack of a clear empirical understanding of chronic fatigue syndrome/myalgic … Continue reading
Gwyn’s sponsored walk for ME Research UK
Ex ME Sufferer Gwyn Hopkins is to walk 150 miles to raise money for charity ME Research UK. “I suffered from ME. for 5 years, at first bed bound, then in a wheelchair. I made a complete recovery by the … Continue reading
The essential features of ME & CFS need to be defined
Research abstract: Considerable debate surrounds the search for the defining features of patients with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). Current case definitions were created through clinical consensus. Failure to operationalize these case definitions has led to considerable … Continue reading
Blood test found to distinguish IBS
Research abstract Diarrhea-predominant irritable bowel syndrome (IBS) is diagnosed through clinical criteria after excluding “organic” conditions, and can be precipitated by acute gastroenteritis. Cytolethal distending toxin B (CdtB) is produced by bacteria that cause acute gastroenteritis, and a post-infectious animal … Continue reading
IOM report comment
Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An IOM Report on Redefining an Illness, by Ellen Wright Clayton MD JD in JAMA March 17, 2015, Vol 313, No. 11 Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multisystem and often long-lasting disorder, with … Continue reading
Prof Alan Light videos on fatigue and gene expression in ME/CFS
Professor Alan Light, from Utah University, talks about his involvement with ME in videos posted on the Dutch Youtube site ME/cvs Vereniging. no. 58 Fatigue – the differences between generalised fatigue and the fatigue of ME/CFS no. 59 Genes & gene expression & … Continue reading
Increased susceptibility to upper respiratory tract infections in CFS
Research abstract: Background: Previous research has suggested that chronic fatigue syndrome (CFS) patients report more upper respiratory tract illnesses (URTIs) than controls. Aims The present study aimed to replicate and extend this research. Method A prospective study of the incidence … Continue reading
