Category Archives: News
Which name for the illness do you prefer?
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Patients with a chronic condition need support to self-manage
Research review: Background: Receiving adequate support seems to be crucial to the success of self-management. Although different empirical studies separately examined patients’ preferences for self-management support (SMS), an overview is lacking. Objective: The aim of this qualitative review was to … Continue reading
Norwegian self-management programme for CFS
Research abstract Objective: The aim of the study was to develop a group-based self-management programme for individuals with chronic fatigue syndrome (CFS) by using the participants’ experiences with the initial version of the programme, which intends to promote coping with … Continue reading
New name & diagnostic criteria for ME/CFS recommended in US
The committee formed by the Institute of Medicine in the USA to examine diagnostic criteria in ME/CFS released its 280-page report on Tuesday 10th February. Its primary message is that the disease is serious, chronic, complex and multisystem, and that … Continue reading
Should those with lifelong fatigue be excluded from a diagnosis of ME?
Research abstract: The case definitions for chronic fatigue syndrome (CFS) and chronic fatigue syndrome/Myalgic Encephalomyelitis (ME) stipulate that the experience of lifelong fatigue is an exclusionary criterion (Carruthers et al., 2003 ; Fukuda et al., 1994 ). This article examines … Continue reading
Fatigue in MS and ME: similarities and differences
Cort Johnson in his blog Health rising asks if the fatigue found in MS and ME is similar or different: Simply looking at the symptoms indicated that MS is primarily a fatiguing disorder, and that MS patients may, in fact, … Continue reading
Chronic fatigue in MS improved by idebenone
Research abstract: Objective: The evaluation of the dynamics of asthenia, chronic fatigue syndrome, emotional disorders and quality of life of patients with multiple sclerosis (MS) and to explore the possibility of using idebenon (noben) in treatment of these impairments. Material … Continue reading
More severe symptoms & impairment in ME than in CFS confirmed
Research abstract A revised sudden onset case definition for Myalgic Encephalomyelitis (ME) has been developed (Jason, Damrongvachiraphan, etal., 2012) based on past case definitions. In a prior study, Jason, Brown, and colleagues (2012 ) compared patients recruited using the 1994 … Continue reading
Neuro-immune pathophysiology of fatigue
Research abstract Many patients with systemic immune-inflammatory and neuro-inflammatory disorders, including depression, rheumatoid arthritis, systemic lupus erythematosus, Sjögren’s disease, cancer, cardiovascular disorder, Parkinson’s disease, multiple sclerosis, stroke, and chronic fatigue syndrome/myalgic encephalomyelitis, endure pathological levels of fatigue. The aim of … Continue reading
Body awareness interventions could improve quality of life in CFS & FM
Review abstract: OBJECTIVES: Patients with long-lasting pain problems often complain of lack of confidence and trust in their body. Through physical experiences and reflections they can develop a more positive body- and self-experience. Body awareness has been suggested as an … Continue reading
