Category Archives: News

Resources for the diagnosis and management of CFS/ME in primary care

Researchers from Manchester have developed resources to support the diagnosis and management of CFS/ME in primary care. Abstract NICE guidelines emphasise the need for a confident, early diagnosis of Chronic Fatigue Syndrome/ Myalgic Encephalitis (CFS/ME) in Primary Care with management … Continue reading

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ME/CFS Primer for clinical practitioners

The International Association for Chronic Fatigue Syndrome/ME (IACFS/ME) has published a Primer for clinical practitioners. It is available as a PDF file and is free to download, though donations are invited. A 42 page spiral bound print booklet can be … Continue reading

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Pioneer for ME, David Lewis 1939- 2012

Paediatrician David Lewis has died of pancreatic cancer at the age of 73.  As a consultant paediatrician at Bronglais hospital, Aberystwyth, he was one of very few doctors in Wales to take ME seriously in the 1980s and 1990s. His … Continue reading

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Herpesvirus and parvovirus found in ME/CFS

A Latvian study was published in Advances in Virology: Association of active human herpesvirus-6, -7 and parvovirus b19 infection with clinical outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome. Abstract: Frequency of active human herpesvirus-6, -7 (HHV-6, HHV-7) and parvovirus … Continue reading

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Clonidine in the treatment of adolescent CFS: pilot study

Norwegian researchers have completed a trial into the use of Clonidine with adolescents with CFS. Clonidine is used for a wide range of disorders including hypertension, neuropathic pain, ADHD, anxiety/panic disorder, migraine and hot flushes. ABSTRACT: BACKGROUND: This pilot study … Continue reading

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Mitochondrial dysfunction found in ME/CFS

Abstract: The objectives of this study are to test the hypothesis that the fatigue and accompanying symptoms of Chronic Myalgic Encephalomyelitis/ Fatigue Syndrome are in part due to defects in energy provision at the cellular level, and to understand the … Continue reading

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Michelle Penny – Living with ME for the last 17 years

For the last 17 years, Michelle Penny has been crippled by chronic fatigue and pain, which has left her virtually bed-bound. She tells Rachel Mainwaring what it’s like living with ME at Wales online. Excerpts: “I relapsed in October and … Continue reading

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Dr Betty Dowsett 1920-2012 ME champion

It is with deep regret that we announce the death of Dr Betty Dowsett on June 14 in a nursing home in Cambridge at the age of 91.  In 2001, at the age of 80, and already retired for many … Continue reading

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The proof El shaved her head for WAMES!

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‘ME is debilitating, misunderstood, confusing and unpredictable’

Pippa Bennet describes her experience of ME on the We are Cardiff blog: 12th May is International ME awareness day. You know ME, it’s the lazy people’s disease? Well, it’s estimated that over 28 million people now suffer from it … Continue reading

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