Category Archives: News
ME services in Wales can learn from Long COVID Adferiad programme says Health Minister
Welsh Government wants Long COVID community model to also treat and support ME, CFS and MS On 31st March 2022 the Health Minister Eluned Morgan announced further funding for the Adferiad programme for Long COVID recovery: “today I am … Continue reading
Research: Genetic association study in ME/CFS
Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) identifies several potential risk loci, by Riad Hajdarevic, Asgeir Lande, Jesper Mehlsen, Anne Rydland, Daisy D Sosa, Elin B Strand, Olav Mella, Flemming Pociot, Øystein Fluge, Benedict A Lie, Marte K … Continue reading
Research: Long-term C-19 sequelae in adolescents: the overlap with OI & ME/CFS
Long-term COVID 19 sequelae in adolescents: the overlap with orthostatic intolerance and ME/CFS, by Amanda K Morrow, Laura A Malone, Christina Kokorelis, Lindsay S Petracek, Ella F Eastin, Katie L Lobner, Luise Neuendorff & Peter C Rowe in Curr Pediatr … Continue reading
WAMES AGM 11 April 2022
WAMES Annual General Meeting WAMES will be holding our annual business meeting via Skye on Monday 11th April at 4pm. This is the opportunity for members to elect officers, oversee the finances and identify priorities for the coming year. … Continue reading
Welsh Government responds & asks if NICE is being implemented
Welsh Government replies to WAMES WAMES wrote to the Health Minister on 8 February asking why an announcement had been made about services for recent patients with long COVID, but not about services for people who have been living … Continue reading
Perspective: Drawing on findings from critical illness to explain ME/CFS
Perspective: Drawing on findings from critical illness to explain Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Dominic Stanculescu and Jonas Bergquist in Front. Med., 08 March 2022 [doi.org/10.3389/fmed.2022.818728] Abstract: We propose an initial explanation for how myalgic encephalomyelitis / chronic fatigue … Continue reading
Research: Predictors for developing severe ME/CFS following infectious Mononucleosis
Predictors for developing severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome following infectious Mononucleosis, by Leonard A Jason, Joseph Cotler, Mohammed F Islam, Jacob Furst, Ben Z Katz in Journal of Rehabilitation Therapy, 2022;4(1):1-5, February 21, 2022 Research abstract: Background: About 10% … Continue reading
ME/CFS trigger: tuberculosis
Researchers have identified the mycobacterium tuberculosis infection as a trigger for CFS, particularly amongst men and the over 65s in Taiwan. TB in Wales is in decline and numbers are small, but the NHS considers it still to be a … Continue reading
Evaluating case diagnostic criteria for ME/CFS
Evaluating case diagnostic criteria for myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS): toward an empirical case definition, by Karl E Conroy, Mohammed F Islam, Leonard A Jason in Disability and Rehabilitation, Mar 2, p 1-8 2022 [doi.org/10.1080/09638288.2022.2043462] Implications for rehabilitation ME/CFS is … Continue reading
Research: POTS found in long-haul COVID-19 patients: similarities with ME/CFS
Orthostatic symptoms and reductions in cerebral blood flow in long-haul COVID-19 patients: similarities with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by C (Linda) MC van Campen, Peter C Rowe and Frans C Visser in Medicina 2022, 58(1), 28 [doi.org/10.3390/medicina58010028] 24 December 2021 … Continue reading
