Tag Archives: Stonebird

August 8th 2018: Understanding & Remembrance Day for Severe ME

August 8th, 2018: Understanding and Remembrance Day for Severe ME, by Jody Smith in Phoenix Rising blog, 4 Aug 2018 Can you read these words I’ve written on this page? Good. Then you know that I am NOT an example … Continue reading

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Severe ME remembrance day, 8 August 2017

Stonebird: the experience of severe ME At the Stonebird website you can find resources to help you understand the experience of severe ME and how to care for people with it. The Stonebird represents the idea that you don’t have to … Continue reading

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ME charity responses to NICE consultation

Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME   25% ME Group Action for ME Forward ME Hope 4 ME & Fibro Northern Ireland Invest in ME Local … Continue reading

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Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands

Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading

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ME classified as a medically unexplained mental health issue by GPs & psychiatrists

The Joint Commissioning Panel for Mental Health has published: Guidance for commissioners of services for people with medically unexplained symptoms The term Medically Unexplained Symptoms (MUS) refers to persistent bodily complaints for which adequate examination does not reveal sufficient explanatory … Continue reading

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2016 – In remembrance

Yet still I must demand and demand again. Their death demands we ask for integrity and truth. But there is so little of it out there All lost in compromise or outright denial and ignorance. The dead grow, Shockingly. Loved … Continue reading

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Paralysis in ME

Study abstract Paralysis is a symptom that is rarely highlighted in the literature for ME, yet is found amongst the most severely ill ME population and even some of those not so severely affected. My wife has experienced it for … Continue reading

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