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10 organisations call for PACE data release, AYME refuses
ME Action article, 6 March 2016: Ten organisations call for PACE data release, AYME refuses Ten organisations so far have joined ME/CFS patient Clark Ellis’s call to Queen Mary University of London (QMUL) to release data from the PACE trial … Continue reading
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Tagged AYME, data sharing, Information Commissioner’s Office, ME Action, PACE trial
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WAMES writes in support of releasing PACE trial data
Today WAMES, joins the ME Association, Tymes Trust, 25% Group, Invest in ME and Hope for ME in calling for the release of PACE trial data so that an independent investigation can begin: To: Records and Information Compliance Manager, Queen … Continue reading
Another request for PACE trial data refused
Prof Vincent Racaniello writes in Virology blog: At least we’re not vexatious 19 January 2016 On 17 December 2015, Ron Davis, Bruce Levin, David Tuller and I requested trial data from the PACE study of treatments for ME/CFS published in … Continue reading
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Tagged data sharing, PACE trial, Prof Vincent Racaniello
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PLOS One to investigate PACE trial’s refusal to share data
Response from PLOS One editors to requests for more information about the PACE trial: Several readers have raised concerns regarding the analyses reported in this article. We are also aware that there have been requests for the data from this … Continue reading
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Tagged data sharing, Medical Research Council, MRC, open access, PACE trial, PLOS One, Prof James C Coyne
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Prof Coyne’s PACE trial FOI request refused as considered ‘vexatious’
Prof James Coyne has received a reply from the authors of the PACE trial refusing access to data: 11 December 2015 Dear Professor Coyne, Request for information under the Freedom of Information Act 2000 (“the Act”) Further to your recent … Continue reading
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Tagged data sharing, FOI, Freedom of Information request, ME Action, PACE trial, Prof James C Coyne
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