Tag Archives: DecodeME study
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading
Do I need a formal diagnosis of ME/CFS?
Do you have a diagnosis of ME or CFS from the NHS? For decades many people with suspected ME have not been able to find an NHS professional to confirm their diagnosis. As the NHS has had nothing to … Continue reading
From DNA to drug development. Five success stories show the potential of DecodeME
DecodeME Study blog: From DNA to drug development. Five success stories show the potential of DecodeME How do you find treatments for a disease like ME/CFS, where nothing is known for sure about its causes? One way scientists can … Continue reading
Why we need a study like DecodeME
Why we need a study like DecodeME – scientific paper published, by the ME/CFS Biomedical Partnership, 26 Jan 2021 Today, we know almost nothing for sure about what causes ME/CFS. We do know that the illness can be triggered by … Continue reading
DecodeME is recruiting more study participants
Dear DecodeME Friend, We have been blown away by the response we have had since we announced funding for the study. Over 25,000 people have signed up to receive updates, with nearly 20,000 people in the UK indicating they are … Continue reading
Genetic risk factors of ME/CFS: a critical review
Genetic risk factors of ME/CFS: a critical review, by in Human Molecular Genetics, ddaa169, 3 Aug 2020 [doi.org/10.1093/hmg/ddaa169] Review abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex multisystem illness that lacks effective therapy and a biomedical understanding of … Continue reading
