Tag Archives: DecodeME study

PEM: Running out of battery & feeling intensely unwell: a carer’s perspective

PEM: Running out of battery & feeling intensely unwell: a carer’s perspective   I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading

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Do I need a formal diagnosis of ME/CFS?

Do you have a diagnosis of ME or CFS from the NHS?   For decades many people with suspected ME have not been able to find an NHS professional to confirm their diagnosis. As the NHS has had nothing to … Continue reading

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From DNA to drug development. Five success stories show the potential of DecodeME

DecodeME Study blog: From DNA to drug development. Five success stories show the potential of DecodeME   How do you find treatments for a disease like ME/CFS, where nothing is known for sure about its causes? One way scientists can … Continue reading

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DecodeME study recruitment extended until Sep 2021

DecodeME recruitment update + April webinar   An update from the The DecodeME ME/CFS Study Team, 25 March 2021: We’d like to update you on the recruitment start date for the DecodeME study, and tell you about an upcoming Q&A webinar on … Continue reading

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Why we need a study like DecodeME

Why we need a study like DecodeME – scientific paper published, by the ME/CFS Biomedical Partnership, 26 Jan 2021 Today, we know almost nothing for sure about what causes ME/CFS. We do know that the illness can be triggered by … Continue reading

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DecodeME is recruiting more study participants

Dear DecodeME Friend, We have been blown away by the response we have had since we announced funding for the study. Over 25,000 people have signed up to receive updates, with nearly 20,000 people in the UK indicating they are … Continue reading

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Genetic risk factors of ME/CFS: a critical review

Genetic risk factors of ME/CFS: a critical review, by in Human Molecular Genetics, ddaa169, 3 Aug 2020 [doi.org/10.1093/hmg/ddaa169]   Review abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex multisystem illness that lacks effective therapy and a biomedical understanding of … Continue reading

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£3.2 million for new DecodeME DNA study

£3.2 million for new DecodeME DNA study   The ME/CFS Biomedical Partnership has received funding to begin the DecodeME DNA study. This will be a very large study to analyse DNA from the saliva of people with ME/CFS to see … Continue reading

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