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- Research: ME/CFS – diverse experiences, one recognisable illness
- Research: Marginal differences found between ME/CFS & LC
- Research: Impaired recovery from exertion in ME/CFS confirmed – treatments suggested
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- Calls for wider research into PEM in ME/CFS, Long COVID & FM
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Tag Archives: DecodeME study
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading
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Tagged #LearnFromME, #WorldMEday, carer, DecodeME study, PEM, PESE, Post Exertional Symptom Exacerbation, Post-exertional malaise, symptoms, World ME Day
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Do I need a formal diagnosis of ME/CFS?
Do you have a diagnosis of ME or CFS from the NHS? For decades many people with suspected ME have not been able to find an NHS professional to confirm their diagnosis. As the NHS has had nothing to … Continue reading
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Tagged #ImplementNICEmecfs, DecodeME study, diagnosis, NHS Wales, NICE ME/CFS guideline
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From DNA to drug development. Five success stories show the potential of DecodeME
DecodeME Study blog: From DNA to drug development. Five success stories show the potential of DecodeME How do you find treatments for a disease like ME/CFS, where nothing is known for sure about its causes? One way scientists can … Continue reading
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Tagged DecodeME study, Dr Luis Nacul, ME/CFS DNA study
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DecodeME study recruitment extended until Sep 2021
DecodeME recruitment update + April webinar An update from the The DecodeME ME/CFS Study Team, 25 March 2021: We’d like to update you on the recruitment start date for the DecodeME study, and tell you about an upcoming Q&A webinar on … Continue reading
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Tagged DecodeME study
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Why we need a study like DecodeME
Why we need a study like DecodeME – scientific paper published, by the ME/CFS Biomedical Partnership, 26 Jan 2021 Today, we know almost nothing for sure about what causes ME/CFS. We do know that the illness can be triggered by … Continue reading
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Tagged DecodeME study, genetic research, genome-wide association study, GWAS, HLA genes, Joshua J Dibble, ME/CFS DNA study, Prof Chris Ponting, Simon McGrath, UK ME/CFS Biobank
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DecodeME is recruiting more study participants
Dear DecodeME Friend, We have been blown away by the response we have had since we announced funding for the study. Over 25,000 people have signed up to receive updates, with nearly 20,000 people in the UK indicating they are … Continue reading
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Tagged DecodeME study, genome-wide association study, ME/CFS Biomedical Partnership
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Genetic risk factors of ME/CFS: a critical review
Genetic risk factors of ME/CFS: a critical review, by in Human Molecular Genetics, ddaa169, 3 Aug 2020 [doi.org/10.1093/hmg/ddaa169] Review abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex multisystem illness that lacks effective therapy and a biomedical understanding of … Continue reading
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Tagged DecodeME study, gene sequencing, genome-wide association study, GWAS, Joshua J Dibble, Prof Chris Ponting, Simon McGrath, UK ME/CFS Biobank
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£3.2 million for new DecodeME DNA study
£3.2 million for new DecodeME DNA study The ME/CFS Biomedical Partnership has received funding to begin the DecodeME DNA study. This will be a very large study to analyse DNA from the saliva of people with ME/CFS to see … Continue reading
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Tagged Ali McNamara, Danny Chowdhury, DecodeME study, Dr Nina Muirhead, ME/CFS Biomedical Partnership, ME/CFS DNA study, Medical Research Council, MRC, National Institute for Health Research, Prof Chris Ponting, UK ME/CFS Biobank
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