Tag Archives: ME Awareness

If you are living with ME – #YouAreNotAlone #MillionsMissing

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ME Awareness raising in Wales 2021

ME Awareness in Wales 2021   Awareness raising can happen at any time, by anyone, but traditionally the ME community individually and in groups have focussed efforts around 2 dates in the year: International ME Awareness Day – 12 May … Continue reading

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Poem: Words escape

ME Awareness week:       Words escape, a poem by Derryan Paul               ME affects the brain. Words escape. A sentence on a page is meaningless, and yet, you know there is a meaning somewhere … Continue reading

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Gwyneth’s ME story part 2 – my route to recovery

ME Awareness week:       Gwyneth’s ME story part 2 – the route to recovery   Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is part 2 of her story. … Continue reading

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‘Staying at home’ with ME – Sarah’s story

ME Awareness week: ‘Staying at home’ with ME – Sarah’s story   Having had ME for 27 years I’m not expecting to get better. Every day requires time spent lying down, experiencing pain in my muscles and joints and sensitivity … Continue reading

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No Lockdown fun for Melanie, just bedbound with ME

ME Awareness Week: No Lockdown fun for Melanie, just bedbound with ME   My daughter has had ME for the last 27 years, since she was 11 years old when she suffered a bad attack of glandular fever. She was … Continue reading

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‘Paused together’ or ‘left behind’ – Frances’ thoughts on Covid-19 & ME

ME Awareness week: ‘Paused together’ in Lockdown or Housebound with ME & ‘left behind’ – Frances’ thoughts on Covid-19 and ME   On having ME – Myalgic Encephalomyelitis Going from being active, well, independent and having a future with good … Continue reading

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Video: I got a virus, I didn’t die, but I never recovered

ME Awareness Week:       I got a virus, I didn’t die, but I never recovered     #MEAction network video, May 2020 A short film by people with ME and experts, warning of the long term consequences that viruses can … Continue reading

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Covid-19 or ME crash? – Kay’s story

ME Awareness Week:           Covid-19 or ME crash? – Kay’s story   ME and me, before C-19 I was first diagnosed with ME/CFS when I was in my teens, so I have lived with it for 25 years plus, with varying … Continue reading

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More to experience during Lockdown- Karen & Mike’s ME story

ME Awareness Week: More to experience during Lockdown – Karen & Mike’s ME story   I live with my husband in mid-Wales and we both have ME, having met because of it 23 years ago (through the ME Singles Group) … Continue reading

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