Tag Archives: MEAction

EU parliament ME petition response: ‘we do not fund specific diseases’

#MEAction blog post, 3 Oct 2019: ME activist testifies before EU parliament Evelien Van Den Brink spoke powerfully and brilliantly to the Committee on Petitions in the European Parliament from her stretcher. Evelien laid out both an emotional and scientific … Continue reading

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The UK debate on ME has been granted – 24 January 2019

#MEAction blog post, 17 January 2019: Take Action Now! The UK debate on ME has been granted We are delighted that Carol Monaghan MP has managed to secure a debate in Parliament on Thursday afternoon, 24th January. This debate has … Continue reading

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Westminster Hall debate could be a ‘turning of the tide’ for ME

#MEAction blog post, 21 June 2018: Westminster Hall debate could be a ‘turning of the tide’ for ME Today was a turning of the tide for Myalgic Encephalomyelitis (ME) as 26 MPs attended a Westminster Hall debate on treatment and research for … Continue reading

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Dr VanElzakker’s ME research using PET, MRI and Tesla-7 scans

MEAction blog post, by Jaime S, 12Dec 2016: Dr VanElzakker: two new ME/CFS studies at Harvard #MEAction recently interviewed Dr. Michael VanElzakker regarding two, new studies on ME/CFS. The first aims to discover evidence of increased activity where the sensory … Continue reading

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Canada: officials turn down grant application because CFS “isn’t real”

MEAction blog post, by Jaime S, 26 August 2016: Canada: officials turn down grant app because CFS “isn’t real” For many months the Canadian Institutes of Health Research, the Canadian equivalent to the NIH, has advised that: “The IMHA [the Institute … Continue reading

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The UK ME/CFS Biobank paves the way for bigger & better research

MEAction blog post, by Simon McGrath, 11 August 2016: The UK ME/CFS biobank paves the way for bigger and better research Simon McGrath reports that the UK ME/CFS Biobank is open for business, with blood samples available from 300 patients, … Continue reading

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Rehmeyer makes statisticians’ ‘jaws drop’ over PACE

MEAction blog post by Alex Anderssen, 8 August 2016: Rehmeyer makes statisticians’ ‘jaws drop’ over PACE Science writer Julie Rehmeyer presented a critique of the PACE trial to North America’s largest gathering of statisticians in Chicago earlier this week. Her talk was titled, “Bad … Continue reading

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QMUL spent £250,000 on PACE data tribunal

MEAction blog post by Alex Anderssen, 9 July 2016: QMUL spend £250,000 on PACE data tribunal Queen Mary University of London (QMUL) have revealed that they spent £250,000 on legal fees in the recent tribunal concerning the release of anonymised data … Continue reading

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Woman from Wales is an MEAction’s Poetry competition winner

Eleanor Dent, from South Wales, has been placed 6th place in an international poetry competition with her poem Music soars aloft, which describes memories of a past life playing the flute. MEAction launched the competition in April to honour those … Continue reading

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Medline Plus removes PACE paper

Solve ME/CFS Initiative announces on 5 Dec 2015 that the US National Institutes of Health (NIH) has removed an article on the UK PACE study from Medline Plus, its website for patients. The PACE study reported that ‘cognitive behavioral therapy and graded exercise therapy are among … Continue reading

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