Tag Archives: NICE guideline ME/CFS

NICE ‘pauses’ publication – links to articles & comments

Links to articles and comments on the ‘pausing’ of the publication of the 2021 NICE ME/CFS guideline.   WAMES receives letter from NICE with the announcement  17 August WAMES writes to NICE  18 August WAMES ponders the NICE guideline shockwave  … Continue reading

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WAMES ponders the NICE guideline shockwave

WAMES ponders the NICE guideline shockwave How far will it extend?   People with ME/CFS have been looking forward to the publication of the revised NICE guideline on 18th August 2021, since the review process began in early 2018. Frustratingly … Continue reading

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WAMES writes to NICE

WAMES writes to NICE about publication delays   The shock of yesterday’s announcement from NICE, ‘pausing’ publication of the ME/CFS guideline, was followed up this morning when there was still no announcement about what was to happen next. Are they … Continue reading

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NICE postpones tomorrow’s ME/CFS guideline publication!

NICE has ‘paused’ ME/CFS Guideline publication!   As a stakeholder for the NICE Guideline revision WAMES has received an email from NICE, just as we were putting the finishing touches to our press release and Survey report. Doubtless it will … Continue reading

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Medical school education on ME

Medical school education on Myalgic Encephalomyelitis, by Nina Muirhead, John Muirhead, Grace Lavery and Ben Marsh in Medicina 2021, 57(6), 542; [doi.org/10.3390/medicina57060542] 28 May 2021 (This article belongs to the Special Issue ME/CFS: Causes, Clinical Features and Diagnosis)   Research abstract: … Continue reading

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The PACE trial should be retracted because it was seriously unethical

The PACE trial should be retracted, because it was seriously unethical, and the lead investigators continue to deny that, by Dr Neil McFarlane in DrNMblog, 19 March 2021 This was submitted (December 2020) to NICE in response to the new … Continue reading

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WAMES response to draft NICE ME/CFS guideline

WAMES response to draft NICE ME/CFS guideline   This week WAMES sent in our response to the ME/CFS guideline consultation. Thanks to all who sent us their comments on the guideline and to those who have shared their stories and … Continue reading

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Give us your comments and questions for NICE by 14 Dec 2020

NICE ME/CFS draft guidelines consultation   The draft NICE guideline is open for consultation until December 22nd 2020. Send your comments and questions to us by Monday 14 December for inclusion in the WAMES response Contact the helpline or use … Continue reading

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NICE ME/CFS draft guideline: context & promise to review

NICE ME/CFS draft guideline: context & promise for the future   The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments for inclusion in … Continue reading

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NICE ME/CFS draft guideline: supporting people with ME/CFS in work, education & training

NICE ME/CFS draft guideline: supporting people with ME/CFS in work, education & training   The draft NICE guideline is open for consultation until December 22nd 2020. Contact the helpline or use the contact form on this website with your comments … Continue reading

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