Tag Archives: Forward ME Group

Non-disclosure order for NICE 18 Oct Roundtable participants

Posted on 10/12/2021 by wames

NICE ME/CFS Guideline Roundtable discussion still ‘under wraps’   On 21 September NICE announced the Roundtable would be held on Monday 18th October in London and they would be inviting: “relevant professional organisations to attend the meeting, plus representatives from … Continue reading →

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UK ME charity statement on the Covid vaccine

Posted on 01/13/2021 by wames

Forward-ME: ME charity statement on the Covid vaccine, 12 January 2021   We are receiving a very high number of enquiries from people with M.E. asking if they should have the Covid-19 vaccine, and when they should expect to be … Continue reading →

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Margaret, Countess of Mar, & ME advocate, retires

Posted on 05/04/2020 by wames

ME Research UK: The Countess of Mar – an Appreciation 1 May 2020 From 1st May 2020, when the Countess of Mar retires officially from the House of Lords after almost 45 years’ service, the ME community will be losing … Continue reading →

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CBT & GET are ‘unsuitable treatments or management approaches for ME/CFS’

Posted on 04/04/2019 by wames

The results of the Forward ME and Oxford Brookes University patient survey on CBT and GET in ME/CFS have been published. 2,274 people with ME/CFS of all ages responded to the online survey with their experiences of cognitive behavioural therapy and/or … Continue reading →

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CBT & GET patient survey – ends 31 Jan 2019

Posted on 01/14/2019 by wames

CBT and GET Patient Survey Forward ME has launched a survey, having been asked by the National Institute of Health and Care Excellence (NICE) to gather evidence and experiences of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT). NICE … Continue reading →

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Forward ME group writes to the Science Media Centre

Posted on 04/06/2018 by wames

ME Research UK blog post, 5 April 2018: Forward-ME Group Letter – Science Media Group Forward-ME Group Letter Forward-ME Group Chair, The Countess of Mar, has written on behalf of the members of the Group to the Chief Executive of … Continue reading →

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Forward ME Group writes to the Times: patients are ‘not simply deconditioned’

Posted on 03/23/2018 by wames

Times online letter, 22 March 2018: TREATMENT FOR PATIENTS WITH ME Sir, The article by Tom Whipple, (“Findings of £5m ME chronic fatigue study ‘worthless’,” Mar 22) highlights a long-standing problem. The National Institute for Health and Care Excellence (Nice) … Continue reading →

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Forward-ME Group meeting minutes 7 Feb 2018

Posted on 03/09/2018 by wames

Forward ME Group minutes Forward-ME consists of charities and voluntary organisations invited by the Countess of Mar to meet from time to time. The Aim of Forward-ME is to promote effective joint working by ME and CFS organisations to maximise impact … Continue reading →

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Forward ME Group minutes 10 Jan 2018

Posted on 02/13/2018 by wames

ME Research UK blog post, 12 Feb 2018: Forward ME Group Minutes – 10th January 2018 Minutes of the meeting held  in Residence 2, House of Lords, Wednesday 10 January 2018 starting 2pm Present: Countess of Mar (Chairman); Dr Charles … Continue reading →

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The end of the All Party Parliamentary Group on M.E.

Posted on 08/23/2017 by wames

Forward-ME Statement: All Party Parliamentary Group on M.E. update and next steps Following discussion between elected officers, the joint Secretariat, and M.E. charity partners, the All Party Parliamentary Group on M.E. (APPG) will not be re-registered at this time. The … Continue reading →

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