Monthly Archives: July 2014
9th Invest in ME International Conference report
A report has been produced by Rosamund Vallings MB BS of the Invest in ME 2014 conference held on 30th May. It includes a summary of the following sessions: Prof Jonathan Edwards (London) who spoke about the lessons learnt for ME … Continue reading
Mentally ill benefits to be cut?
Tories discuss stripping benefits claimants who refuse treatment for depression according to the Daily Telegraph. Senior ministers now believe the rules should be reviewed in order to reduce the “huge” numbers of people who are declared unfit for work due … Continue reading
NICE admits CFS/ME guideline does not meet the need
On June 25th 2014 the Forward ME Group met with Prof Mark Baker, Director of the Centre for Clinical Practice at the National Institute for Health and Clinical Excellence (NICE). From the minutes: Professor Mark Baker, NICE 2.1 The Chairman … Continue reading
Join sponsored walk Dee valley and raise funds for WAMES July 19th
AVOW are facilitating a Sponsored Walk to help you raise money for your own cause! Walk 1: Trevor Basin to Llangollen along the canal path- This walk is just short of 5 miles long and will take approximately 2 hours. … Continue reading
Guidance on ME for welfare tribunals
ME is listed in the Equal Treatment Bench Book which contains guidance on Equality & Diversity issues for the judiciary, this includes Tribunal Chairs. It may be useful for people with ME to highlight this information with the members of … Continue reading
‘Flowers’ in the blood – abnormally shaped red blood cells in CFS
CASE REPORT Abstract Introduction: Chronic fatigue syndrome is a debilitating condition characterized by persistent fatigue, post-exertional malaise, myalgia, arthralgia, lymph node tenderness, impaired memory and concentration, autonomic irregularities, and other specific symptoms affecting multiple body systems. Diverse hypotheses have been … Continue reading
Integrated care in Cardigan proposal – public ‘drop-in’ 23 July 2014
As plans for Cardigan Integrated Resource Centre develop, Hywel Dda University Health Board has arranged a public drop-in session for members of the public to have a look at the plans and ask questions about the new development. The event … Continue reading
Continuing NHS Healthcare claims deadline 31 July 2014
Continuing NHS Healthcare (CHC) is a package of services for those people whose health needs are of such a nature, complexity, intensity and unpredictability that they need to be arranged and funded solely by the NHS. You may be able … Continue reading
Welfare system causing hardship in Wales says CAB
A report, One Day at a Time launched 8 July 2014 by Citizens Advice Cymru highlights that many of the most vulnerable in Wales are being forced into hardship due to the biggest changes to the welfare system in over sixty … Continue reading
South West Wales hospitals – your experiences wanted
In May, 2014, The Andrews Report – ‘Trusted to Care’ was published, which highlighted some very poor standards of care in the Princess of Wales and Neath Port Talbot Hospital. ABMU Health Board has accepted the findings and recommendations of … Continue reading
