Author Archives: wames
The RituxME & CycloME studies – video of Dr Oystein Fluge talk
Video posted on the RME Sverige You Tube channel, 19 Nov 2016: The RituxME and CycloME studies – Ongoing Clinical Research in the ME/CFS Research Group, by Öystein Fluge, MD, Dep. Oncology and Medical Physics, Haukeland University Hospital, Bergen, Norge … Continue reading
Genetic variation affects adrenergic receptors in ME/CFS
ME Research UK comment, 7 Dec 2016: Genetic variation affects adrenergic receptors Given the estimated 20,000 genes that determine the characteristics of human beings (and make up the human genome), identifying those that may be responsible for the development of … Continue reading
Can patients with CFS really recover after GET or CBT?
Research abstract: BACKGROUND: Publications from the PACE trial reported that 22% of chronic fatigue syndrome patients recovered following graded exercise therapy (GET), and 22% following a specialised form of CBT. Only 7% recovered in a control, no-therapy group. These figures … Continue reading
Alison Hunter case report
ME Australia blog post: Case report: Alison Hunter by Christine Hunter, 13 December 2016 For the past decade patients diagnosed with chronic fatigue syndrome have been shamefully mistreated due to government policy failure and lack of medical education. Case Report … Continue reading
How me & my ME became worse… following an exercise programme
Rosa rainbows blog post: How me and my ME became worse, 17 September 2016 Extracts: I haven’t written a blog post for about two months, and the reason is that I have become very ill. For my friends who do … Continue reading
Dr Phil Hammond writes about the ME campaigners’ challenge to the science of CBT & GET
Private eye Medicine Balls column, 10 December 2016: ‘ME campaigners don’t ignore CBT and GET… but they do challenge the science’ Private eye Medicine Balls column, 25 November 2016: ‘ME cluster bomb’ [Written by ‘M.D.’, the nom de plume of Dr Phil … Continue reading
Make Welsh streets more walkable questionnaire for age 50+
Here is a chance to let people know about the additional challenges ME brings to walking in Welsh streets. Ageing well in Wales announcement: Help us make Welsh streets more walkable Many of us take walking for granted. However, for … Continue reading
Danish RCT of cognitive behavior therapy for whatever ails your physician about you
PLOS blog post by James Coyne PhD, 7 December 2016: Danish RCT of cognitive behavior therapy for whatever ails your physician about you I was asked by a Danish journalist to examine a randomized controlled trial (RCT) of cognitive behavior … Continue reading
Exercise exposes new types of POTS
Health rising blog post, by Cort Johnson, 6 December: Exercise Exposes New Types of Postural Orthostatic Tachycardia Syndrome (POTS) Extracts: Exercise has been used in many studies to understand chronic fatigue syndrome (ME/CFS), but nobody until recently has used exercise … Continue reading