Author Archives: wames
ME featured on radio programme Post Cyntaf
Listen to Post Cyntaf, a Welsh language morning news programme on Radio Cymru featured ME on Friday 16 Dec 2016. Part 1 (17.47 mins – 22.22mins) Interview with student Alwen Messmah from North Wales, and her mother Sian Part 2 … Continue reading
A cardiac marker for disability in ME
A Cardiac Marker for Disability in Myalgic Encephalomyelitis, Written by Carol Sieverling (2004), Edited by Maryann Spurgin (2016). Forward (2016): The fascinating thing about this article is that everything from chemical allergies to immune dysfunction in ME is explained in … Continue reading
The RituxME & CycloME studies – video of Dr Oystein Fluge talk
Video posted on the RME Sverige You Tube channel, 19 Nov 2016: The RituxME and CycloME studies – Ongoing Clinical Research in the ME/CFS Research Group, by Öystein Fluge, MD, Dep. Oncology and Medical Physics, Haukeland University Hospital, Bergen, Norge … Continue reading
Genetic variation affects adrenergic receptors in ME/CFS
ME Research UK comment, 7 Dec 2016: Genetic variation affects adrenergic receptors Given the estimated 20,000 genes that determine the characteristics of human beings (and make up the human genome), identifying those that may be responsible for the development of … Continue reading
Can patients with CFS really recover after GET or CBT?
Research abstract: BACKGROUND: Publications from the PACE trial reported that 22% of chronic fatigue syndrome patients recovered following graded exercise therapy (GET), and 22% following a specialised form of CBT. Only 7% recovered in a control, no-therapy group. These figures … Continue reading
Alison Hunter case report
ME Australia blog post: Case report: Alison Hunter by Christine Hunter, 13 December 2016 For the past decade patients diagnosed with chronic fatigue syndrome have been shamefully mistreated due to government policy failure and lack of medical education. Case Report … Continue reading
How me & my ME became worse… following an exercise programme
Rosa rainbows blog post: How me and my ME became worse, 17 September 2016 Extracts: I haven’t written a blog post for about two months, and the reason is that I have become very ill. For my friends who do … Continue reading
Dr Phil Hammond writes about the ME campaigners’ challenge to the science of CBT & GET
Private eye Medicine Balls column, 10 December 2016: ‘ME campaigners don’t ignore CBT and GET… but they do challenge the science’ Private eye Medicine Balls column, 25 November 2016: ‘ME cluster bomb’ [Written by ‘M.D.’, the nom de plume of Dr Phil … Continue reading
Make Welsh streets more walkable questionnaire for age 50+
Here is a chance to let people know about the additional challenges ME brings to walking in Welsh streets. Ageing well in Wales announcement: Help us make Welsh streets more walkable Many of us take walking for granted. However, for … Continue reading
