Author Archives: wames
Carers Week 8-14 June 2020: Making caring visible
Carers Week 2020: Making caring visible Carers Week is an annual campaign to raise awareness of caring and highlight the challenges unpaid carers face recognise the contribution they make to families and communities throughout the UK help people who … Continue reading
Impact of Coronavirus: people with chronic illness say “I feel forgotten”
Chronic Illness Inclusion Project blog post: “I feel forgotten”, by Anna Ruddock, June 1 2020 A submission to the Women and Equalities Committee about the impact of coronavirus on people with chronic illness. In April, the Women and Equalities … Continue reading
Scientists call for more European research on ME/CFS
European ME Coalition Press Release: Scientists call for more European research on ME/CFS, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). … Continue reading
Physical activity measures in patients with ME/CFS: correlations between peak oxygen consumption, the physical functioning scale of the SF-36 questionnaire, & the number of steps from an activity meter
Physical activity measures in patients with myalgic encephalomyelitis/chronic fatigue syndrome: correlations between peak oxygen consumption, the physical functioning scale of the SF-36 questionnaire, and the number of steps from an activity meter, by CMC van Campen, Peter C Rowe, Freek … Continue reading
The Health Minister, Covid-19, ME, rehabilitation & NICE
The Health Minister comments on Covid-19, ME, rehabilitation & NICE The Health Minister Vaughan Gething has replied to the letter WAMES sent to him on International ME Awareness Day highlighting the links between Covid-19, PVFS and ME, and requesting … Continue reading
The concept of ‘illness without disease’ impedes understanding of CFS: a response to Sharpe & Greco
The concept of ‘illness without disease’ impedes understanding of chronic fatigue syndrome: a response to Sharpe and Greco, by Steven Lubet, David Tuller in BMJ Medical Humanities. Published Online First: 01 June 2020. [doi: 10.1136/medhum-2019-011807] Article abstract: In a … Continue reading
Metabolic dysfunction in ME/CFS not due to anti-mitochondrial antibodies
Metabolic dysfunction in myalgic encephalomyelitis/chronic fatigue syndrome not due to anti-mitochondrial antibodies, by Isabell Nilsson, Jeremy Palmer, Eirini Apostolou, Carl-Gerhard Gottfries, Muhammad Rizwan, Charlotte Dahle and Anders Rosén in Front. Med., 31 March 2020 [doi.org/10.3389/fmed.2020.00108 ] Research abstract: Metabolic profiling … Continue reading
Modeling disability: softly making the invisible visible
Modeling disability: softly making the invisible visible, by Libby Evan (2020) Bachelor of Fine Arts Senior Papers 74 Research abstract: “I am not asking for pity. I am telling you about my disability.” – Eli Clare1 In the following … Continue reading
Sleep problems in adolescents with CFS: a case-control study nested within a prospective clinical cohort
Sleep problems in adolescents with CFS: A case-control study nested within a prospective clinical cohort, by Maria Elizabeth Loades, Katharine A Rimes, Trudie Chalder in Clinical Child Psychology and Psychiatry, May 22 2020 [doi.org/10.1177/1359104520918364] Research abstract: Sleep problems have … Continue reading
