Author Archives: wames
‘Staying at home’ with ME – Sarah’s story
ME Awareness week: ‘Staying at home’ with ME – Sarah’s story Having had ME for 27 years I’m not expecting to get better. Every day requires time spent lying down, experiencing pain in my muscles and joints and sensitivity … Continue reading
Gwyneth’s ME story part 1 – trapped in my useless body
ME Awareness week: Gwyneth’s ME story part 1 – trapped in my useless body Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is her story, told in 3 … Continue reading
No Lockdown fun for Melanie, just bedbound with ME
ME Awareness Week: No Lockdown fun for Melanie, just bedbound with ME My daughter has had ME for the last 27 years, since she was 11 years old when she suffered a bad attack of glandular fever. She was … Continue reading
WAMES asks Health Minister for combined healthcare strategy for Covid-19 survivors, PVFS & ME
ME Awareness Week: WAMES asks Health Minister for combined healthcare strategy for Covid-19 survivors, PVFS & ME WAMES has written to the Health Minister and other officials on International ME Awareness day to draw attention to the links between … Continue reading
The origin of International ME Awareness Day
The origin of International ME Awareness Day – May 12th Excerpt from: MAY 12th International Awareness Day “If a cause and cure are to be found for ME/CFS, FM, MCS and related illnesses in the near future, government and … Continue reading
Poem: A nurse with ME
ME Awareness Week: A nurse with ME – a poem by L Mair Jones As we acknowledge the contribution of nurses on International Nurses Day, we remember that nurses too can be confined to home with a virus. … Continue reading
35 year-old living in aged care reveals what life is like inside during this pandemic (Aus)
ME Awareness week: Thirty-five-year-old living in aged care reveals what life is like inside during this pandemic From SBS News Insight (Australia) by Ketra Wooding, 9 May 2020: Ketra has been forced to live in an aged care facility due … Continue reading
‘Paused together’ or ‘left behind’ – Frances’ thoughts on Covid-19 & ME
ME Awareness week: ‘Paused together’ in Lockdown or Housebound with ME & ‘left behind’ – Frances’ thoughts on Covid-19 and ME On having ME – Myalgic Encephalomyelitis Going from being active, well, independent and having a future with good … Continue reading
Video: I got a virus, I didn’t die, but I never recovered
ME Awareness Week: I got a virus, I didn’t die, but I never recovered #MEAction network video, May 2020 A short film by people with ME and experts, warning of the long term consequences that viruses can … Continue reading
