Category Archives: News
International #MillionsMissing Visibility action in Geneva, May 12 2018
#MillionsMissing on May 12th a day of global action that calls for health equality for everyone with ME On Saturday 12 May, representatives from around the world will gather at Place des Nations in Geneva at 12pm, at the Broken Chair … Continue reading
CFS treatment ‘should be withdrawn’
BBC newsbeat report, 8 May 2019: Chronic fatigue syndrome treatment ‘should be withdrawn’ A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK’s leading experts in the illness. Dr Charles Shepherd says graded … Continue reading
BBC Newsbeat documentary: M.E. and me
BBC Newsbeat film: M.E. And Me Presenter Emma Donohoe was diagnosed with M.E. when she was 19, an illness which many doctors don’t understand and people still talk about as “yuppy flu” – thinking sufferers are being lazy or too depressed … Continue reading
Patients with CFS do not score higher on the autism-spectrum quotient than healthy controls
Patients with chronic fatigue syndrome do not score higher on the autism-spectrum quotient than healthy controls: Comparison with autism spectrum disorder, by Indre Bileviciute‐Ljungar, Daniel Maroti, Susanne Bejerot in Scandanavian Journal of Psychology 2018 May 8 Research abstract: Clinically, there … Continue reading
ME Awareness week 7-13 May 2018 – campaign season!
ME Awareness week 7-13 May 2018 – campaign season! International ME Awareness day began in 1993. American Tom Hennessey chose the birthdate of Florence Nightingale, as she was stricken by an ME-type illness in her 30s and was often … Continue reading
Childhood sleep & adolescent CFS/ME
Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): evidence of associations in a UK birth cohort, by SM Collin, T Norris, P Gringras, PS Blair, K Tilling, E Crawley in Sleep Med. 2018 Jun;46:26-36. OBJECTIVE/BACKGROUND: Sleep abnormalities are characteristic of … Continue reading
Are probiotic treatments useful on FM or CFS patients?
Review abstract: Are probiotic treatments useful on fibromyalgia syndrome or chronic fatigue syndrome patients? A systematic review, by P. Roman, F. Carrillo-Trabalón, N. Sánchez-Labraca, AF Estévez, D. Cardona in Benef Microbes. 2018 Apr 26:1-10 [Epub ahead of print] Evidence suggests … Continue reading
#TimeForUnrestWales – Join the campaign!
#TimeForUnrestWales a campaign for health equality and the recognition of the neurological condition of ME Much work is needed to put ME & CFS on an equal basis with other neurological conditions! WAMES is asking the Cabinet Secretary for Health: … Continue reading
#TimeForUnrestWales – the struggle to get an accurate diagnosis
#TimeForUnrestWales a campaign for recognition of ME and health equality There is a Health and Social Care crisis for people with ME in Wales, starting with the struggle patients have to find an accurate diagnosis from doctors who understand ME. … Continue reading
