Category Archives: News
ME/CFS and Adferiad (Recovery) Long COVID
ME/CFS and Adferiad (Recovery) services People in Wales, and further afield, have been expressing concern about plans to place ME/CFS services in existing Long COVID services. The Health Minister announced on the 14th March that there would be additional … Continue reading
Research: ME/CFS is common in Long COVID patients
ME/CFS is common in PASC / long COVID A US long COVID clinic found that 43% of PASC/ long COVID patients met the criteria for ME/CFS though they acknowledge that a larger more diverse group of patients might alter … Continue reading
Research: Symptom-based clusters (sub-groups) in ME/CFS
Finding sub-groups in ME/CFS Prof Leonard Jason worked with Dutch researchers to identify sub-groups of ME/CFS patients by symptom clusters. They used Leonard’s DePaul Symptom Questionnaire and data analysis software SOM. 45 subgroups were identified, some small. The researchers … Continue reading
Welsh long COVID services to be opened up to ME/CFS & FM
Funding boost for services for long-term conditions Health Minister Eluned Morgan has announced increased funding for Adferiad (long COVID) services. In 2022 she allocated £5m and this has now been raised to £8.3m for 2023. This will be shared … Continue reading
#newWAMESwebsite fund is growing!
#newWAMESwebsite total reaches £350 A big thank you to Sharon’s birthday fundraiser friends for raising more money to add to other income which gives us an extra £150 to develop a new website. Read about the new website adventure … Continue reading
Orthostatic intolerance & chronotropic incompetence in ME
OI and CI in ME Orthostatic intolerance and chronotropic incompetence in patients with Myalgic Encephalomyelitis or Chronic Fatigue Syndrome, by K Miwa in Circulation Reports 2023; 5: 55–61 [doi:10.1253/circrep.CR-22-0114] Research abstract: Orthostatic intolerance is a common symptom in ME/CFS, … Continue reading
Research: Distinguishing ME/CFS & FM
Distinguishing ME/CFS and FM through gene expression Canadian researchers have measured the activity (expression) of genes in people with ME/CFS and Fibromyalgia. 3 of the 11 miRNA were over-expressed in ME/CFS and under-expressed in FM. These three miRNAs could … Continue reading
The World ME Alliance & the WHO discuss disability health equity
The WMEA engages with the WHO over disability health equity Following the World ME Alliance’s letter to the World Health Organization (WHO) highlighting critical gaps in their “Global report on health equity for persons with disabilities”, we have met with … Continue reading
Research: Different risk factors distinguish ME/CFS from severe fatigue
Severe Fatigue is not the same as ME/CFS US researchers led by Prof Komaroff found that severe fatigue was much more common than ME/CFS in a large group of nurses and the triggers were different. There was an increased … Continue reading
