Category Archives: News
The social media experiences of long-term patients with ME in Norway
Research abstract: The present article investigates the meanings of social media use for long-term patients, focusing on a group of Norwegian bloggers diagnosed with myalgic encephalomyelitis (ME). This severe illness can confine patients to their homes for long periods of … Continue reading
Mast cell disease activation
Health rising Book review by Remy, 9 May 2016: Mast Cell Activation Disease – The Modern Epidemics of Chronic illness, by Afrin My hope is that people will read this book and get tested to find out if they are in … Continue reading
Doing research in ME/CFS with ME/CFS
Article introduction: My name is Dr. Keith Geraghty, I am an Honorary Research Fellow at the University of Manchester in the Centre for Primary Care. My main research interests are patient safety and harms, doctor-patient relations, medically unexplained illness and ME/CFS … Continue reading
Finnish patients & health workers asked: What is a disease?
Research abstract: Objective: To assess the perception of diseases and the willingness to use public-tax revenue for their treatment among relevant stakeholders. Design: A population-based, cross-sectional mailed survey. Setting: Finland. Participants: 3000 laypeople, 1500 doctors, 1500 nurses (randomly identified from … Continue reading
Prof Jason’s video lecture to undergrads on ME & CFS
Published on 22 Apr 2016 Leonard A. Jason’s lecture regarding his work in the ME and CFS arenas, presented to an undergraduate class at DePaul University.
Evaluation of a Norwegian approach to investigating suspected CFS/ME
Article introduction: BACKGROUND: Chronic fatigue is a frequently occurring problem in both the primary and specialist health services. The Department of Neurology at Haukeland University Hospital has established a standard assessment for patients referred with suspected CFS/ME. This study reports … Continue reading
CFS patients more likely to suppress emotions
Science daily article, 17 May 2016: Chronic fatigue patients more likely to suppress emotions Chronic fatigue syndrome patients report they are more anxious and distressed than people who don’t have the condition, and they are also more likely to suppress … Continue reading
Epidemiological characteristics of CFS/ME in Australian patients
Research abstract: Background: No epidemiological investigations have previously been conducted in Australia according to the current clinical definitions of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). The aim of this study was to describe sociodemographic and illness characteristics of Australian patients with … Continue reading
Impact of sleep quality and fatigue on quality of life in CFS
Research abstract: OBJECTIVES: To explore the interrelationship of different dimensions (fatigue, neuroticism, sleep quality, global mental and physical health) in patients with chronic fatigue syndrome (CFS). METHODS: Patients meeting the Fukuda criteria of CFS filled out two independent fatigue scales (Fatigue … Continue reading
Is chronic fatigue syndrome heterogeneous?
Review abstract: Background: There is evidence for and against functional somatic syndromes being either lumped together or separated apart. The aim of this presentation is to review the evidence regarding the heterogeneity of chronic fatigue syndrome (CFS) and to provide new data addressing … Continue reading
