Category Archives: News
People with ME/CFS have long been told it’s all in their head – these scientists disagree
The Canary blog, 8 June 2016, by Conrad Bower: CFS have long been told it’s all in their head – these scientists disagree A conference bringing together the brightest minds in Myalgic Encephalomyelitis a.k.a Chronic Fatigue Syndrome (ME/CFS) research, presented … Continue reading
The Microbe Discovery Project
The Microbe Discovery Project makes a plea for donations. It is a patient-led initiative supporting Dr. Ian Lipkin & Dr. Mady Hornig’s ME/CFS research at the Columbia University Center for Infection and Immunity, Mailman School of Public Health, New York. “ME/CFS … Continue reading
Systematic review of drug therapies for CFS/ME finds no drugs universally effective
Review abstract: Purpose: The pathogenesis of chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is complex and remains poorly understood. Evidence regarding the use of drug therapies in CFS/ME is currently limited and conflicting. The aim of this systematic review was to examine the existing evidence on … Continue reading
Carers week 2016 – carers need supportive communities
Carers Week is an annual campaign to raise awareness of caring, highlight the challenges carers face and recognise the contribution they make to families and communities throughout the UK. Carers Week 6-12 June 2016 The life chances of many of … Continue reading
Gene expression factor analysis used to differentiate CFS, FM and depression
Research abstract: OBJECTIVE: To determine if independent candidate genes can be grouped into meaningful biologic factors, and whether these factors are associated with the diagnosis of chronic fatigue syndrome (CFS) and fibromyalgia syndrome (FMS), while controlling for comorbid depression, sex, … Continue reading
The social media experiences of long-term patients with ME in Norway
Research abstract: The present article investigates the meanings of social media use for long-term patients, focusing on a group of Norwegian bloggers diagnosed with myalgic encephalomyelitis (ME). This severe illness can confine patients to their homes for long periods of … Continue reading
Mast cell disease activation
Health rising Book review by Remy, 9 May 2016: Mast Cell Activation Disease – The Modern Epidemics of Chronic illness, by Afrin My hope is that people will read this book and get tested to find out if they are in … Continue reading
Doing research in ME/CFS with ME/CFS
Article introduction: My name is Dr. Keith Geraghty, I am an Honorary Research Fellow at the University of Manchester in the Centre for Primary Care. My main research interests are patient safety and harms, doctor-patient relations, medically unexplained illness and ME/CFS … Continue reading
Finnish patients & health workers asked: What is a disease?
Research abstract: Objective: To assess the perception of diseases and the willingness to use public-tax revenue for their treatment among relevant stakeholders. Design: A population-based, cross-sectional mailed survey. Setting: Finland. Participants: 3000 laypeople, 1500 doctors, 1500 nurses (randomly identified from … Continue reading
Prof Jason’s video lecture to undergrads on ME & CFS
Published on 22 Apr 2016 Leonard A. Jason’s lecture regarding his work in the ME and CFS arenas, presented to an undergraduate class at DePaul University.
