Category Archives: News
Mortality in ME/CFS
Review article by ME Research UK, 19 February 2016: Mortality in ME/CFS Whether or not people with ME/CFS die earlier, for whatever reason, than the general population is an important question, and there are few good clues to the answer … Continue reading
Post Activity Relapse (PAR) or PEM?
Another contribution to the discussion of the key characteristic of ME, Post Exertional Malaise (PEM), comes from Kasper Ezelius of the Sweish patient group ME-föreningen: Suggestion to replace PEM by PAR Deterioration after mental or physical exertion is often referred as … Continue reading
Canadian evidence-based ME/CFS diagnosis and management
Article abstract: This review was written from the viewpoint of the treating clinician to educate health care professionals and the public about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). It includes: the clinical definition of ME/CFS with emphasis on how to diagnose ME/CFS; … Continue reading
WAMES writes in support of releasing PACE trial data
Today WAMES, joins the ME Association, Tymes Trust, 25% Group, Invest in ME and Hope for ME in calling for the release of PACE trial data so that an independent investigation can begin: To: Records and Information Compliance Manager, Queen … Continue reading
Replacing ME and CFS with SEID is not the way forward
Abstract of discussion paper: Myalgic encephalomyelitis (ME), described in the medical literature since 1938, is characterized by distinctive muscular symptoms, neurological symptoms, and signs of circulatory impairment. The only mandatory feature of chronic fatigue syndrome (CFS), introduced in 1988 and redefined … Continue reading
The downside of mindfulness
Guardian article: Is mindfulness making us ill? by Dawn Foster, Saturday 23 January 2016 It’s the relaxation technique of choice, popular with employers and even the NHS. But some have found it can have unexpected effects I am sitting in a … Continue reading
Comparing the DePaul Symptom Questionnaire with doctors’assessments
Research abstract: Background: Diagnostic assessment of chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME) is largely based on a two part process; screening patients who might meet criteria and following up this assessment with physicians’ clinical evaluation of a range … Continue reading
Developing case definitions for ME and CFS using practical experience and consensus
Research abstract: Background: There has been considerable controversy regarding how to name and define the illnesses known as myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). The Institute of Medicine (IOM) report has proposed new clinical criteria and a new name for this … Continue reading
Overview of evidence for biochemical muscle abnormality in CFS
Review article abstract: Introduction: Chronic fatigue syndrome/ Myalgic Encephalomyelitis (CFS/ME) is a debilitating disorder of unknown aetiology and is characterised by severe disabling fatigue in the absence of an alternative diagnosis. Historically, there has been a tendency to draw psychological explanations … Continue reading
Chronic fatigue affects 1.9% of 16 year olds & is more common with family adversity
Research abstract: BACKGROUND: In the Avon Longitudinal Study of Parents and Children (ALSPAC) birth cohort, chronic disabling fatigue lasting ≥6 months affected 1.3% of 13-year-olds, was equally common in boys and girls, and became more prevalent with increasing family adversity. … Continue reading
