Category Archives: News
ACT (Acceptance and commitment therapy) for CFS
Research abstract: Acceptance is understood to be an important element in coping and living with chronic illnesses such as diabetes and chronic pain, and increasing acceptance has been related to a number of positive outcomes such as reduced symptoms as well … Continue reading
Effect on siblings of children with CFS/ME
Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a disabling condition known to have a negative impact on all aspects of a child’s life. However, little is understood about the impact of CFS/ME on siblings. A total of … Continue reading
Low NK cell activity differs in ME/CFS & MS
Research abstract: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) and Multiple Sclerosis (MS) patients suffer from debilitating fatigue which is not alleviated by rest. In addition to the fatigue related symptoms suffered by CFS/ME and MS patients, dysfunction of the immune system … Continue reading
Poor quality of life in young people with ME/CFS
An ME Research UK article comments on the recent research in Norway into adolescents with CFS: For such a devastating illness, there is surprisingly little information in the scientific literature about patients’ experiences of living with ME/CFS day-to-day. The few … Continue reading
Teenage kickboxer with CFS
Caerphilly teen kickboxer to defend world crown, by Caio Iwan in South Wales Argus online, Wednesday 5 August 2015 A TEENAGE kickboxer from Pontllanfraith is set to travel to Germany to defend her world crown – despite nearly having her … Continue reading
Severe ME day Saturday 8 August 2015
WAMES invites you to join with them and the 25% ME Group to raise awareness of the home care needs of people with severe ME. Many severely affected people in Wales struggle to help professionals understand the extent of their need … Continue reading
NHS Wales ME services development plan
The ME-CFS & FM Implementation Group, chaired by Prof Jonathan Richards (Cwm Taf Locality Clinical Director), has met twice during the first half of 2015. This Group gives Health Boards (HBs) a chance to share experiences and encourage each other … Continue reading
POTS
Research abstract: Postural tachycardia syndrome (POTS) is a form of chronic orthostatic intolerance for which the hallmark physiological trait is an excessive increase in heart rate with assumption of upright posture. The orthostatic tachycardia occurs in the absence of orthostatic … Continue reading
First Class student overcomes CFS to graduate in Bangor
Article from Bangor University website: A Psychology student who credits Bangor University for ‘taking a chance’ on her has graduated with a First Class Honours degree. Ashleigh Johnstone from Douglas on the Isle of Man has battled Chronic Fatigue Syndrome … Continue reading
Muscle weakness in arms & trunk in ME/CFS
ME Research UK comments on research into muscle weakness, July 21 2015: One of the key difficulties that ME/CFS patients face is standing (orthostasis), particularly standing still. For them, simply being upright can trigger a cluster of symptoms, such as … Continue reading
