Category Archives: News
Countess of Mar tells House of Lords that people with ME/CFS are treated “abominably” by caring professions
The Countess of Mar, (chair of the Forward ME Group) contributed to a short debate on NHS: Medical Competence and Skill in the House of Lords 7 January 2015. My Lords, I, too, am grateful to the noble Lord, Lord Parekh, for introducing this … Continue reading
Kate and Paul’s story of ME & isolation – online
James Martin’s TV show Operation meet the street looks at loneliness. An episode screened on Dec 18th features young couple Paul and Kate in Ammanford. Kate has ME and Paul is her full time carer. Their story begins at 4mins 50 Simon’s story … Continue reading
Long term prognosis study of patients with CFS
Research abstract Objective: To examine the effect of early clinical and demographic factors on occupational outcome, return to work or awarded permanent disability pension in young patients with chronic fatigue syndrome (CFS). Design: Longitudinal cohort study. Intervention: A written self-management … Continue reading
The impact of a child’s CFS/ME on family relationships
Research abstract Although there is a large body of research literature concerning the impact of childhood chronic illness on family relationships, very little of this has specifically focussed on the impact of childhood Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME). The current … Continue reading
Voices from the shadows – a film about ME, with a warning
The film ‘Voices from the Shadows’ is now available to watch for free until the end of the year – on Vimeo – by entering a promo code of VOICES after clicking the “rent for $3” button. Vimeo also requires … Continue reading
ME in children – Specialist lectures on video
Seminar on children and young people with ME/CFS – 2014 On November 12, 2014 the National Association for ME in Sweden organized a seminar on children and young people with ME/CFS. The seminar was conducted in cooperation with RME Stockholm and … Continue reading
End ME/CFS project
Cort Johnson on the OMF’s new project: The Open Medicine Foundation (OMF) has announced it has created and is raising funds for a huge “End ME/CFS” project. They’re looking for five million dollars a year to fund it — about … Continue reading
Severity scales in CFS/ME
Research abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a physical and cognitive disabling illness, characterised by severe fatigue and a range of physiological symptoms that primarily affects women. The immense variation in clinical presentation suggests differences in severity based on … Continue reading
Diagnostic criteria for CFS & ME
Abstract The current study had two objectives. (1) to compare objective and self-report measures in patients with chronic fatigue syndrome (CFS) according to the 1994 Center for Disease Control (CDC) criteria, patients with multiple sclerosis (MS), and healthy controls, and … Continue reading
Defining recovery in CFS
Abstract INTRODUCTION: Adamowicz et al. have reviewed criteria previously employed to define recovery in chronic fatigue syndrome (CFS). They suggested such criteria have generally lacked stringency and consistency between studies and recommended future research should require “normalization of symptoms and … Continue reading
