Category Archives: News

Voices from the shadows – a film about ME, with a warning

The film ‘Voices from the Shadows’ is now available to watch for free until the end of the year – on Vimeo – by entering a promo code of   VOICES after clicking the “rent for $3” button. Vimeo also requires … Continue reading

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ME in children – Specialist lectures on video

Seminar on children and young people with ME/CFS – 2014 On November 12, 2014 the National Association for ME in Sweden organized a seminar on children and young people with ME/CFS. The seminar was conducted in cooperation with RME Stockholm and … Continue reading

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End ME/CFS project

Cort Johnson on the OMF’s new project: The Open Medicine Foundation (OMF) has announced it has created and is raising funds for a huge “End ME/CFS” project. They’re looking for five million dollars a year to fund it — about … Continue reading

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Severity scales in CFS/ME

Research abstract Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is a physical and cognitive disabling illness, characterised by severe fatigue and a range of physiological symptoms that primarily affects women. The immense variation in clinical presentation suggests differences in severity based on … Continue reading

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Diagnostic criteria for CFS & ME

Abstract The current study had two objectives. (1) to compare objective and self-report measures in patients with chronic fatigue syndrome (CFS) according to the 1994 Center for Disease Control (CDC) criteria, patients with multiple sclerosis (MS), and healthy controls, and … Continue reading

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Defining recovery in CFS

Abstract INTRODUCTION: Adamowicz et al. have reviewed criteria previously employed to define recovery in chronic fatigue syndrome (CFS). They suggested such criteria have generally lacked stringency and consistency between studies and recommended future research should require “normalization of symptoms and … Continue reading

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Row over 4 nations comparitive study of NHS

In Wales online on Oct 17C 2014: We cannot trust the Department for Health’: Carwyn Jones attacks Whitehall in astonishing blast Wales First Minister has accused the Department for Health in London of being too politicised and said that Wales … Continue reading

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Relaxation therapy and CFS & FM

Abstract OBJECTIVE: To establish the effects of relaxation therapy on autonomic function, pain, fatigue and daily functioning in patients with chronic fatigue syndrome or fibromyalgia. METHOD: A systematic literature study was performed. Using specific keywords related to fibromyalgia or chronic … Continue reading

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Online programmes & ME/CFS

Abstract BACKGROUND: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a long-term, debilitating condition that impacts numerous areas of individuals’ lives. The two predominant treatment options for ME/CFS are cognitive behavioral therapy and graded exercise therapy; however, many people have found these … Continue reading

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ME/CFS & FM Health Services Action Plan

On 16 September 2014 the Health Minister, Mark Drakeford, wrote to Local Health Boards drawing their attention to the Action Plan for improving services for people with ME, CFS and Fibromyalgia in Wales. The Action Plan was devised by the ME/CFS … Continue reading

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