Category Archives: News
What not to say to someone with CFS or ME
BBC Newsbeat article, by Liz Jackson, January 26, 2016: What not to say to someone with chronic fatigue syndrome or ME Chronic fatigue syndrome (CFS) is a much misunderstood illness – but it’s also more common than previously thought. Persistent exhaustion was found … Continue reading
The complexity of diagnosing POTS
Research highlights: We evaluated how the diagnosis can be missed in a single orthostatic stress test Orthostatic tachycardia is more prominent in the morning, but not always. Symptoms were more frequent in the morning, but not during majority of the … Continue reading
Mitochondrial DNA variants correlate with symptoms in ME/CFS
Research abstract: Background: Mitochondrial dysfunction has been hypothesized to occur in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), a disease characterized by fatigue, cognitive difficulties, pain, malaise, and exercise intolerance. We investigated whether haplogroup, single nucleotide polymorphisms (SNPs), or heteroplasmy of … Continue reading
Walking & co-ordination problems in ME/CFS
ME Research UK overview article: Walking & co-ordination problems Mechanistic factors that compromise automaticity of walking. From Automaticity of walking. Clark DJ. Front. Hum Neurosci, 05 May 2015 We already know that many ME/CFS patients have difficulties standing (orthostasis), … Continue reading
The downside of mindfulness
Guardian article: Is mindfulness making us ill? by Dawn Foster, Saturday 23 January 2016 It’s the relaxation technique of choice, popular with employers and even the NHS. But some have found it can have unexpected effects I am sitting in a … Continue reading
Comparing the DePaul Symptom Questionnaire with doctors’assessments
Research abstract: Background: Diagnostic assessment of chronic fatigue syndrome (CFS) and myalgic encephalomyelitis (ME) is largely based on a two part process; screening patients who might meet criteria and following up this assessment with physicians’ clinical evaluation of a range … Continue reading
Immune activation in the central nervous system of ME/CFS found by cytokine network analysis of cerebrospinal fluid
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome is an unexplained debilitating disorder that is frequently associated with cognitive and motor dysfunction. We analyzed cerebrospinal fluid from 32 cases, 40 subjects with multiple sclerosis and 19 normal subjects frequency-matched for age and … Continue reading
Developing case definitions for ME and CFS using practical experience and consensus
Research abstract: Background: There has been considerable controversy regarding how to name and define the illnesses known as myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). The Institute of Medicine (IOM) report has proposed new clinical criteria and a new name for this … Continue reading
Healthwise Wales study
HealthWise Wales is a Welsh Government initiative to involve everyone in Wales in improving the health and wellbeing of the population, by taking part in research. They are asking you to: Help them to work out the most important questions on … Continue reading
Overview of evidence for biochemical muscle abnormality in CFS
Review article abstract: Introduction: Chronic fatigue syndrome/ Myalgic Encephalomyelitis (CFS/ME) is a debilitating disorder of unknown aetiology and is characterised by severe disabling fatigue in the absence of an alternative diagnosis. Historically, there has been a tendency to draw psychological explanations … Continue reading
