Category Archives: News
Important to identify primary sleep disorders in CFS
Review abstract: INTRODUCTION: Chronic fatigue syndrome (CFS) is characterised by the presence of intractable fatigue and non-restorative sleep, symptoms which are also very prevalent in multiple diseases and appear as side effects of different drugs. Numerous studies have shown a … Continue reading
Measuring Expressed Emotion in carers of people with CFS
Research abstract: Purpose The current study aimed to examine the reliability of the Five Minute Speech Sample (FMSS) for assessing relative Expressed Emotion (EE) compared with the Camberwell Family Interview (CFI) in a sample of relatives of adult patients with Chronic … Continue reading
Dr Goudsmit queries use of exercise therapy for ME
Article conclusion: In my view, the PACE trial is not controversial because of lay ‘misunderstandings’ or the rejection that stress may play a role, but because it is a poorly designed study with missing data, based on a narrow view … Continue reading
A different way of looking for the cause & development of fatigue
Article abstract: Background: Chronic fatigue syndrome is a common condition characterized by severe fatigue with post-exertional malaise, impaired cognitive ability, poor sleep quality, muscle pain, multi-joint pain, tender lymph nodes, sore throat or headache. Its defining symptom, fatigue is common to several diseases. Areas of … Continue reading
Expectations influence outcomes of MRT for CFS
Research Highlights: Expectancy influenced the severity of fatigue and the physical component of the health-related quality of life after multidisciplinary rehabilitation treatment for patients with chronic fatigue syndrome. Credibility did not significantly influence the outcomes in multidisciplinary rehabilitation treatment or in … Continue reading
Differences between patients with CFS and chronic fatigue
Research abstract: PURPOSE The main research question is: “Do CFS patients differ from fatigued non-CFS patients with respect to physical, cognitive, behavioral, social, and emotional determinants?” In addition, group differences in relevant outcomes were explored. METHOD Patients who met the … Continue reading
MAGENTA trial – PACE for children
Dr Esther Crawley’s study of activity management and Graded Exercise Therapy in children started in September 2015 and is due to end in August 2016 Tymes Trust comments when calling for an investigation into the PACE trial data: “We are frequently … Continue reading
What CFS patients want healthcare providers to learn
Research abstract: Surveys over the past two decades found that patients, advocates, and researchers want the name chronic fatigue syndrome (CFS) to be changed because this label minimizes the severity of the illness (Taylor, Friedberg, & Jason, 2001). The present … Continue reading
Exploring changes to PACE trial outcome measures
Comment in Pub Med: Exploring changes to PACE trial outcome measures using anonymised data from the FINE trial, by Sam Carter, Feb 15 2016 When the results of the PACE trial were published (1, 2) it was noted that the … Continue reading
Neurocognitive improvements in CFS following therapy
Research abstract: BACKGROUND Neurocognitive difficulties are commonly reported by patients suffering from chronic fatigue syndrome (CFS). Moderate improvements from ‘best practice’ therapy are promising, but to date reported efficacy is based entirely on subjective measures. This is problematic, given the … Continue reading
