Category Archives: News
ME/CFS & FM Health Services Action Plan
On 16 September 2014 the Health Minister, Mark Drakeford, wrote to Local Health Boards drawing their attention to the Action Plan for improving services for people with ME, CFS and Fibromyalgia in Wales. The Action Plan was devised by the ME/CFS … Continue reading
Florence Nightingale letters brought together online
A vast archive of letters from Florence Nightingale, many intensely personal and revealing about the woman usually seen as the shadowy Lady with the Lamp, is being brought together online and made freely accessible for the first time. The originals … Continue reading
The importance of understanding how our genes change
Extract from article by Cort Johnson: Epigenetics refers to the changes in sites in our DNA that are susceptible to change over time which can modify the expression of our genes. Our genetic heritage, it turns out, only sets the … Continue reading
How Corinne built a house without harmful chemicals
Flame retardants, formaldehyde and volatile organic compounds shouldn’t be in any of our houses, but for those with Multiple Chemical Sensitivities (MCS), they are a disaster. The tiny house concept has been a godsend for not a few people suffering … Continue reading
ME Cover up – Severe ME Day August 8th 2014
the ME cover up Many people with ME feel they are invisible to the outside world and that ME is not taken seriously. “We may not be able to present ourselves to the world because of severe ill health but … Continue reading
DSQ is valid tool for assessing symptoms in ME/CFS
Abstract Background: The diagnosis of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is complex and largely based on self-reported symptom profiles. The field lacks consensus for a singular case definition and heterogeneous samples make comparability across studies difficult. Purpose: The present study … Continue reading
Is CFS an autoimmune disorder with vasoactive neuropeptide dysfunction?
Abstract Chronic fatigue syndrome is a disorder characterised by prolonged fatigue and debility and is mostly associated with post-infection sequelae although ongoing infection is unproven. Immunological aberration is likely and this may prove to be associated with an expanding group … Continue reading
‘Flowers’ in the blood – abnormally shaped red blood cells in CFS
CASE REPORT Abstract Introduction: Chronic fatigue syndrome is a debilitating condition characterized by persistent fatigue, post-exertional malaise, myalgia, arthralgia, lymph node tenderness, impaired memory and concentration, autonomic irregularities, and other specific symptoms affecting multiple body systems. Diverse hypotheses have been … Continue reading
Take responsibility for your own health says Health Minister
In a speech today, Mark Drakeford will call on the people of Wales to become ‘custodians’ of their own health A “new bargain” needs to be struck between the people of Wales and the health service if the NHS is … Continue reading
Do coping strategies improve health in CFS?
Abstract OBJECTIVE/Hypothesis The objective of this study was to examine sub-types of individuals with chronic fatigue syndrome based on variables that are associated with the energy envelope theory and to examine the role of coping strategies in explaining the differences … Continue reading
