Category Archives: News

Is facebook helpful for people with CFS/ME?

Phd thesis abstract: This portfolio thesis comprises of three parts. The first part is a systematic literature review, in which empirical literature relating to the use of Facebook groups in health conditions is explored. It aims to provide an understanding of how individuals … Continue reading

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Does CFS have a neurological origin?

Review abstract: Chronic Fatigue Syndrome (CFS) is distinguished by a persistent malaise and lethargy that physical or mental exertion exacerbates for a period of several days. Sufferers can identify a clear-cut beginning to their condition. In many, it follows a … Continue reading

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3 more UK doctors join request for independent inquiry into PACE Trial

Dr Charles Shepherd, Dr Nigel Speight, and infectious diseases consultant Dr William Weir have joined 39 other signatories to the open letter to the Lancet which first appeared on Prof Vincent Rancaniello’s ‘Virology’ blog on November 13 2015. The letter was … Continue reading

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Patients’ thoughts about the PACE trial

Flat Earth and PACE – both on the wrong side of science PACE and geocentrism – both on the wrong side of science Why the PACE researchers and their institutions affectation of concern for participants is particularly sickening hypocrisy My … Continue reading

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Replacing ME and CFS with SEID is not the way forward

Abstract of discussion paper: Myalgic encephalomyelitis (ME), described in the medical literature since 1938, is characterized by distinctive muscular symptoms, neurological symptoms, and signs of circulatory impairment. The only mandatory feature of chronic fatigue syndrome (CFS), introduced in 1988 and redefined … Continue reading

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Biomarker research partnerships advocated by Dr Alan Light in video lecture

Partnerships to Accelerate Biomarker and Mechanisms Discovery in ME/CFS and Fibromyalgia, by Alan Light, Phd Bateman Horne Center,  Published on Dec 5, 2015 In this live stream education meeting, originally airing on December 2, 2015, Dr Alan Light shared some recent … Continue reading

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London NHS trust finds higher risk of suicide in CFS patients

Research summary: Background: Mortality associated with chronic fatigue syndrome is uncertain. We investigated mortality in individuals diagnosed with chronic fatigue syndrome in secondary and tertiary care using data from the South London and Maudsley NHS Foundation Trust Biomedical Research Centre … Continue reading

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Assessment of CBT for CFS in Britons with diverse ethnic backgrounds

Research abstract: Background: Cognitive-behavioural therapy (CBT) is one of the most promising treatments for chronic fatigue syndrome (CFS). It is unclear whether CBT is effective for Black and minority ethnic (BME) groups. Aims To assess the effectiveness of CBT in BME patients … Continue reading

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Assessment of neurocognitive impairment in CFS using QEEG brain mapping

Research abstract: Importance: Chronic Fatigue Syndrome (CFS) is a chronic disease resulting in considerable and widespread cognitive deficits. Accurate and accessible measurement of the extent and nature of these deficits can aid healthcare providers and researchers in the diagnosis of … Continue reading

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POTS, CFS and reactions to vaccines

Review article: Postural orthostatic tachycardia syndrome (POTS) is a heterogeneous disorder of the autonomic nervous system in which a change from the supine position to an upright position causes an abnormally large increase in heart rate or tachycardia (30 bpm within … Continue reading

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