Category Archives: News
Key issues for understanding ME, biological markers & diagnostic criteria
Review abstract: Myalgic Encephalomyelitis (ME) continues to cause significant morbidity worldwide with an estimated one million cases in the United States. Hurdles to establishing consensus to achieve accurate evaluation of patients with ME continue, fuelled by poor agreement about case definitions, … Continue reading
Group CBT for CFS
Research abstract: BACKGROUND: Meta-analyses have been inconclusive about the efficacy of cognitive behaviour therapies (CBTs) delivered in groups of patients with chronic fatigue syndrome (CFS) due to a lack of adequate studies. METHODS: We conducted a pragmatic randomised controlled trial … Continue reading
Mitochondrial myopathy – differential diagnosis for ME
Research abstract: Introduction: Symptoms of mitochondrial diseases and chronic fatigue syndrome (CFS) frequently overlap and can easily be mistaken. Methods: We report the case of a patient diagnosed with CFS and during follow-up was finally diagnosed with mitochondrial myopathy by … Continue reading
ACT (Acceptance and commitment therapy) for CFS
Research abstract: Acceptance is understood to be an important element in coping and living with chronic illnesses such as diabetes and chronic pain, and increasing acceptance has been related to a number of positive outcomes such as reduced symptoms as well … Continue reading
Patients’ opinions of activity pacing
Research abstract: Objective: Despite the frequent recommendation of activity pacing as a coping strategy for patients with chronic pain and/or fatigue, pacing is interpreted in different ways and there is an absence of a widely accepted pacing scale. We have … Continue reading
Patients’ ME research priorities
Research abstract: Background: The aim of this work was to involve patients in setting future priorities for myalgic encephalomyelitis (M.E.) research. Methods: A national on-line survey was developed collecting structured and unstructured data. Respondents were asked what they considered Action … Continue reading
Effect on siblings of children with CFS/ME
Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) is a disabling condition known to have a negative impact on all aspects of a child’s life. However, little is understood about the impact of CFS/ME on siblings. A total of … Continue reading
Characteristics of CFS/ME sub-group who respond to Rintatolimod (Ampligen)
Research abstract: Background: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is a debilitating disease of unknown pathogenesis consisting of a variety of flu-like symptoms including severe fatigue. Initial analysis of the use of rintatolimod (Poly I: Poly C12U), a selective TLR3 agonist, … Continue reading
UK rituximab trial fundraising total almost reached
Invest in ME has announced the latest fundraising total for the rituximab/B-cell research, which is a great boost as the research team at UCL are about to visit and discuss the subject with Dr Fluge and Professor Mella in Haukeland University Hospital, … Continue reading
