Category Archives: News
Alternatively diagnosed Lyme disease & CFS
Research abstract: BACKGROUND: A subset of patients reporting a diagnosis of Lyme disease can be described as having alternatively diagnosed chronic Lyme syndrome (ADCLS), in which diagnosis is on the basis of laboratory results from a non-reference Lyme specialty laboratory … Continue reading
ME/CFS & FM as functionally impairing as major diseases
Cort Johnson writes about research into Functionally Somatic Syndromes on June 1, 2015 in his blog Health Rising: The study urges the need for more research on FSS, a relatively neglected research area. Especially studies on a better understanding of the … Continue reading
Parent carers’ experiences with severe ME
Research abstract: Experiences of parents who care for sons or daughters with severe myalgic encephalomyelitis are rarely discussed within the literature. Narratives of parent-carers in Lost Voices from a Hidden Illness were analyzed using interpretative phenomenological analysis. This study aimed … Continue reading
Harpist Claire Jones, ME and Scarborough Fair
Welsh harpist Claire Jones talks about her journey with ME and the role of the song Scarborough fair in her recovery, in BBC Radio 4’s series Soul music: Scarborough fair broadcast Sat, 20 June 2015. It is available to listen … Continue reading
NIH report: advancing ME/CFS research
ME Research UK comment, 17 June 2015: The prestigious US scientific journal Annals of Internal Medicine has just published a position paper – Advancing the research on ME/CFS – which summarizes the conclusions of the ‘Pathways to Prevention’ Workshop organized … Continue reading
ME parents’ fury at child abuse claims
Article in Sunday Express by Caroline Wheeler, June 21, 2015: Hundreds of parents whose children suffer from a crippling illness that leaves them permanently exhausted have been falsely accused of child abuse. Charities have helped hundreds of families of children with … Continue reading
Autoimmune disorders in patients with POTS
Research abstract: Objective: In recent years, there have been a number of studies suggesting that POTS may have an autoimmune etiology. This study examined whether the prevalence of antinuclear antibodies (ANA), other markers of autoimmunity and co-morbid autoimmune disorders is … Continue reading
Former Llanelli serviceman inspired by ME sufferer mum
Former Llanelli serviceman to take on 11 physical challenges inspired by ME sufferer mum, in Llanelli Star, June 10, 2015 A former serviceman from Llanelli is pushing his body to the limit — taking on 11 gruelling gruelling physical challenges in a … Continue reading
Gwyn Hopkins walks over 1,000 miles for ME research
First published Tuesday 16 June 2015 in Tivyside advertiser by Enfys Bosworth: Gwyn Hopkins is about to pass the one thousand mile mark on her walk to raise money and awareness for ME research. She set off from Cardigan Castle on … Continue reading
Powerful anti-herpes drug: hope for ME/CFS/FM patients
Powerful anti-herpes drug moves forward: hope for ME/CFS/FM patients by Cort Johnson, June 8, 2015. The “IT” drug for herpesviruses Chimerix has been producing the “it” herpesvirus drug under production. Brincidofovir (formerly CM001) is another example of technology moving forward. … Continue reading
