Category Archives: News
Research: Feeling like ‘a damaged battery’: …lived experiences of UK university students with ME/CFS
Feeling like ‘a damaged battery’: Exploring the lived experiences of UK university students with ME/CFS, by Frances Waite, Dely Lazarte Elliot in Fatigue: Biomedicine, Health & Behavior, 23 Aug 2021 [doi.org/10.1080/21641846.2021.1969800] Research abstract: Introduction: Research regarding students with myalgic … Continue reading
WAMES ponders the NICE guideline shockwave
WAMES ponders the NICE guideline shockwave How far will it extend? People with ME/CFS have been looking forward to the publication of the revised NICE guideline on 18th August 2021, since the review process began in early 2018. Frustratingly … Continue reading
WAMES writes to NICE
WAMES writes to NICE about publication delays The shock of yesterday’s announcement from NICE, ‘pausing’ publication of the ME/CFS guideline, was followed up this morning when there was still no announcement about what was to happen next. Are they … Continue reading
Research review: Redox imbalance links COVID-19 & ME/CFS
Redox imbalance links COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome, by Bindu D Paul, Marian D Lemle, Anthony L Komaroff, Solomon H Snyder in PNAS August 24, 2021 118 (34); [doi.org/10.1073/pnas.2024358118] Review abstract: Although most patients recover from acute COVID-19, … Continue reading
Treatment research: The effects of non-invasive vagus nerve stimulation… in patients with CFS, FM, & rheumatoid arthritis
The effects of non-invasive vagus nerve stimulation on immunological responses and patient reported outcome measures of fatigue in patients with chronic fatigue syndrome, fibromyalgia, and rheumatoid arthritis, by E Traianos, B Dibnah, D Lendrem, Y Clark, V Macrae, V Slater, … Continue reading
New free Pacing app for ME/CFS from Australia
ME/CFS Pacing App from Emerge Australia Emerge Australia would like to introduce to you the ME/CFS Pacing App created by our generous contributor, Mathew Blake. The app is designed to help people with mild to moderate ME/CFS better manage … Continue reading
Make severe ME visible – Severe ME day, Sun 8 Aug 2021
Making severe ME visible An estimated 25% of people with ME are so ill they rarely leave their homes or beds. They feel invisible and ignored. On Severe ME day each year, 8th August, we make a special effort … Continue reading
Introducing WAMES volunteer with severe ME: Michelle
Introducing WAMES trustee & social media volunteer: Michelle Penny Hello, my name is Michelle. I was diagnosed with ME at the age of 10, although it is thought I may have had the condition for about 2 years before … Continue reading
